Amanda Pickard, PhD

Disabled scientist interested in bench-to-bedside and patient advocacy. Vice President @spinalcsfleak. Opinions are my own. 🧪🧫🧬👩🏼‍🔬🦓

[Disabled Academic Collective @DisabledAcadem]

This is why you hire disabled faculty members. Because for many of them, this was the first time they've ever spoken to an openly disabled educator. And that matters. 3/3 #AcademicTwitter #DisabilityTwitter #AcademicChatter

[Amanda Pickard, PhD @AmandaJPickard]

@cannontekstar @nyulangone Honestly they had prior auth issues almost every time I needed something in that office, so I was happy to leave when my HAS did. Can confirm Jefferson is helpful.

[Connie Deline @ConnieDelineMD]

Less than 6 months to #SIH2023 in Hawaii @CMECedarsSinai >>attend in person or virtually. Great faculty lineup! https://t.co/sX5V49KY1k

[Spinal CSF Leak Foundation @spinalCSFleak]

Want to connect with others who are living with spinal CSF leak? Join our support community at Inspire. https://t.co/W84oRlmLcz #becauseyourduramaters

[Amanda Pickard, PhD @AmandaJPickard]

@Dys_auto_nom_ia I just finished putting together my local team of specialists after moving and it took about 8 months. That was with getting off some waitlists faster than expected.

[Courtney S-White, MD @CSWhiteMD]

I had a medical student from Italy shadowing me this week & we discussed healthcare systems. He said “In Italy, it’s free but you have to wait months to be seen.”

Friends, patients are waiting over 6 months to be seen in my clinic AND they have to pay for it!

[WouterSchievink @WouterSchievink]

Today marks the 10 year anniversary of the discovery of the CSF-venous fistula. This has changed many patients’ lives. These fistulas cause spontaneous intracranial hypotension and are now being diagnosed all over the world. ⁦⁦⁦@spinalCSFleak⁩ #SIH #CSFleak #headache

[Amanda Pickard, PhD @AmandaJPickard]

Great to see some #spinalcsfleak content on the cover of @TheJNS! #becauseyourduramaters

[James Rutka @JamesRutka]

Minimally invasive approach to repairing CSF leaks in spontaneous intracranial hypotension shown here on the cover - January issue of @TheJNS https://t.co/p9VpssrCIZ

[Courtney S-White, MD @CSWhiteMD]

Today I had a 60% no show rate. I’d just like to remind people that it is nice to call the office ahead of time if you cannot come in for whatever reason so we can find someone else to come in off the waitlist. People are waiting months to see a neurologist.

[Amanda Pickard, PhD @AmandaJPickard]

@DGlaucomflecken Have to cover allscripts and cerner too 🫣

[WouterSchievink @WouterSchievink]

Save the date for ⁦@CedarsSinai⁩ 5th intracranial hypotension symposium with ⁦@Macquarie_Uni⁩, #ProfMarcusStoodley & ⁦@spinalCSFleak⁩. July 8&9 2023 #Hawaii. Stellar international faculty from four continents: Asia, Australia, North America and Europe. #SIH2023

[WouterSchievink @WouterSchievink]

Speakers at @CedarsSinai⁩ ⁦@Macquarie_Uni⁩ ⁦@spinalCSFleak⁩ symposium will be #S-JWang #DFriedman #SXi #GParker ⁦@marcelmaya⁩ ⁦@PeterGKranz⁩ #JBeck #HDietz #ARao ⁦@DrIanCarroll⁩ ⁦#MMalinzak ⁦@ChusYourBrain⁩ #KMurphy #AMoghekar #SIH2023

[Spinal CSF Leak Foundation @spinalCSFleak]

By far the most common email query we receive from our community members is: How can I find a doctor who can help me? Today we're pleased to announce our physician directory, a helpful starting place for finding care specific to spinal CSF leak. https://t.co/8IdOuSSEhC

[Amanda Pickard, PhD @AmandaJPickard]

@neurahealthco Those prior auths and step therapy though 🥺🫣

[WouterSchievink @WouterSchievink]

A normal brain MRI but very prominent CSF-venous fistula in the lower thoracic spine in this woman with a 5+ year history of recurring post chiropractic manipulation orthostatic headaches. ⁦@spinalCSFleak⁩ #SIH

[Amanda Pickard, PhD @AmandaJPickard]

@neurahealthco Especially for all of us in these storms! 😵‍💫

[Amanda Pickard, PhD @AmandaJPickard]

This is why I just spent 12 days inpatient instead of around 5 days. A team of doctors that believe you can turn things around quickly. My face or vitals will NOT show how much pain I’m actually in. But if I’m inpatient, I’m in a lot of pain. Listen to me. #arachnoiditis #CPP

[Shematologist, MD @acweyand]

PSA: A patient doesn’t need to look like they’re in pain for you to believe them when they say they’re having pain.

[CSF Leak Association @csfleakuk]

Thank you all who joined in with posts & expanded on what pain means for 'leakers'.
CSF leaks are MORE than just a headache & most patients don't agree with the term 'headache' for the head pain experienced.
Keep sharing with us. Stronger together!
#csfleak #PainAwarenessMonth