AmbitCare

We are dedicated to serving families of children who are experiencing seizures and developmental delays.

[AngelmanSyndromeFdn @angelman]

The ASF Family Fund Application is OPEN. Apply for adaptive bikes, safety beds, strollers, iPads, travel expenses to a clinic, therapy expenses - anything to help improve the quality of life of your individual with AS.
https://t.co/sgxS78XioT

[AmbitCare @AmbitCare]

We provide free resources and 1:1 support to help you and your loved ones take control of your medical journey.

[AmbitCare @AmbitCare]

At AmbitCare, our mission is to transform every life that is touched by rare disease.

[AmbitCare @AmbitCare]

70 to 80% of epilepsy cases have a #genetic cause. Yet less than 5% of qualified pediatric patients undergo genetic testing. What is genetic testing? #rarediseases
Learn more: https://t.co/tGNNzdMKAp

[AngelmanSyndromeFdn @angelman]

New ASF Funded Research! Dr. Butler at UTSouthwestern will investigate AAV9 gene therapy as a potential treatment of AS. The approach involves widespread distribution of adeno-associated viral vector type 9 (AAV9) to activate the paternal UBE3A.

[AmbitCare @AmbitCare]

Genetic testing can be fast and seamless at no cost with the help of AmbitCare.
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Learn more: https://t.co/zT5s8koCCn
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#raredisease #rarediseasecommunity #geneticcounseling #genetictesting #seizures #developmentaldelays #findyouranswers #ambitcare

[AmbitCare @AmbitCare]

All month long, we will be celebrating our friends in the AmbitCare community! This week, we celebrate Memphis! As a thank you for being our superhero, we're sending Memphis his choice of one of several gifts! #raredisease
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Follow his story: https://t.co/nQaXs0Efmi

[AmbitCare @AmbitCare]

Tomorrow, we go LIVE to discuss how our services, such as free genetic testing and counseling, can help families searching for answers.

Opt-in for a reminder: https://t.co/DA7ed0EOuj
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#raredisease #rarediseasecommunity #geneticcounseling #genetictesting #seizures

[AmbitCare @AmbitCare]

AmbitCare provides free 1:1 support to help you take control of your #medicaljourney. Current AmbitCare services include free #geneticcounseling and access to genetic testing for those that qualify as well as access to customized resources.
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Learn more: https://t.co/zT5s8ko4MP

[AmbitCare @AmbitCare]

All month long, we will be celebrating our friends in the AmbitCare community! Drop a heart to show this amazing kid some love. As a thank you for being our superhero, we're sending him his choice of one of several gifts! #photocontest #specialneedsfamily #raredisease #ambitcare

[AmbitCare @AmbitCare]

Over the past year, we have met some incredible people. They have refused to allow their medical condition to stop them from enjoying life to the fullest. And we can honestly say, they have changed us forever. #raredisease #rarediseaseawareness #rarediseaseadvocate #ambitcare

[AmbitCare @AmbitCare]

"Confirming our son’s diagnosis gave us peace. I could stop blaming myself and my diabetes for his problems." #mowatwilsonsyndrome #raredisease
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Check out Lennon's journey to a complete diagnosis at https://t.co/dwjY7EGWaS

[AmbitCare @AmbitCare]

Meet Elizabeth! Elizabeth works with the AmbitCare team which provides free services to patients and healthcare providers and also oversees our internal People Experience function.
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#rarediseasenetwork #raredisease #epilepsycommunity #autisticcommunity

[AmbitCare @AmbitCare]

This week, we celebrate Brice! Brice is autistic and has epilepsy. As a thank you for being our superhero, we're sending Brice his choice of one of several gifts!
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#epilepsywarrior #autism #autistic #autismcommunity #specialneedsfamily #ambitcare

[AmbitCare @AmbitCare]

If you would like our assistance in finding answers to your medical questions take our 2-minute questionnaire! #genetictesting #geneticcounseling
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Take our assessment: https://t.co/OLjQr7Upue

[AmbitCare @AmbitCare]

Knows familiar people
Likes to look at self in a mirror
Reaches to grab a toy he wants
Closes lips to show she doesn’t want more food
Rolls from tummy to back
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Learn more: https://t.co/QVipgF1iS8
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#developmentaldelays #developmentalmilestones #specialneeds #ambitcare

[AmbitCare @AmbitCare]

All month long, we will be celebrating our friends in the AmbitCare community! This week, we celebrate Adalia! As a thank you for being our superhero, we're sending Adalia her choice of one of several gifts! #RareDisease #PhotoContest #AmbitCare

[AmbitCare @AmbitCare]

70 to 80% of epilepsy cases have a #genetic cause. Yet less than 5% of qualified pediatric patients undergo genetic testing. What is genetic testing? #rarediseases
Learn more: https://t.co/tGNNzdMKAp

[AmbitCare @AmbitCare]

As we sweat, we also lose sodium. Our brains need sodium to balance electrical activity. A change in the brain’s electrical activity can lead to seizures. So, hydrate, hydrate, hydrate! #seizureawareness #seizurefirstaid #wellnessmonth

[The Defeating Epilepsy Foundation @defeatepilepsy]

What are you grateful for in life? I am grateful that despite having epilepsy, I have had the ability to live my life to the fullest. Comment below what you feel grateful for!

#defeatepilepsy #grateful #motivation #wellness #epilepsy #epilepsyawareness