AngelmanSyndrome

Rare Disorder 1 in 20,000. Information & support for families, caregivers & service providers. Collaborate with international scientists to advance treatments.

[AngelmanSyndrome @AngelmanIRE]

Nice read https://t.co/RtYUr4BSCL

[AngelmanSyndrome @AngelmanIRE]

https://t.co/8Cy0he7O9n

[AngelmanSyndrome @AngelmanIRE]

We are kindly beneficiaries of Saturdays gala ball. As a lot of our families are also supported by Jack & Jill all funds raised will be helping our children. Please support our fundraising goals which will be ensuring our participation in exciting... https://t.co/Lbt6u8joG0

[AngelmanSyndrome @AngelmanIRE]

Reposting for info https://t.co/kgmt5627V9

[AngelmanSyndrome @AngelmanIRE]

For info

[AngelmanSyndrome @AngelmanIRE]

Gentle reminder - Sunday IAD family meet up in playground. Closest entrance is the one on Whitechurch road - parking etc. Main entrance takes you closer to Market, coffee shops.
All welcome 1-3. https://t.co/AWXR8Hxhb1

[AngelmanSyndrome @AngelmanIRE]

For next week folks https://t.co/0b0oGNmRAK

[AngelmanSyndrome @AngelmanIRE]

For Galway and west families https://t.co/UE51TgjysQ

[AngelmanSyndrome @AngelmanIRE]

For info cork area https://t.co/iorMuPn6qe

[AngelmanSyndrome @AngelmanIRE]

https://t.co/KtEyYyaDrR

[AngelmanSyndrome @AngelmanIRE]

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[AngelmanSyndrome @AngelmanIRE]

https://t.co/uhiEQxLyIl

[AngelmanSyndrome @AngelmanIRE]

Hi can you take time to vote for Angelman uk film which the very talented lotti fox has made. A quick register to vote then scroll down charities to Angelman uk. That’s it. https://t.co/yeZxvuyof7

[AngelmanSyndrome @AngelmanIRE]

Delighted if we help support a great night where ASI will benefit as well. https://t.co/tDXJwxIqp7

[AngelmanSyndrome @AngelmanIRE]

350,000 EURO FOR RESEARCH ON ANGELMAN SYNDROME
Call for Applications for Research Grants into Angelman Syndrome
Deadline 4th January 2019

Angelman Syndrome is a rare neurogenetic disorder, resulting from the loss of function of a single gene,... https://t.co/tGYLpq6ysE

[AngelmanSyndrome @AngelmanIRE]

For latest summary of alliance research kindly put together by Annette in more family friendly terms see web site - https://t.co/ywDL8kTH6g https://t.co/K6r0nzyTyP

[AngelmanSyndrome @AngelmanIRE]

https://t.co/4tDDbCeLI1

[AngelmanSyndrome @AngelmanIRE]

https://t.co/5QTv8nnpT3

[AngelmanSyndrome @AngelmanIRE]

Best of luck to Annette Kent one of our board members - wishing you all sunshine. https://t.co/ZIVZwrOrxh

[AngelmanSyndrome @AngelmanIRE]

Emails asking for us to keep your details and send you updates making their way. I appreciate everyone has full inboxes but its the EU law and we have to make contact.
Replies appreciated and required.