AngelmanSyndromeAustralia

Improving the lives of people living with Angelman syndrome and their families through support, networking, advocacy, education and promoting research

[AngelmanSyndromeAustralia @AngelmanSyndro3]

@kate_m_mckenna @janellehmiles Thank you for your care for Lachlan, the Moore family and for shining a light on the challenges of people with #disability and complex needs in this #COVID19 pandemic 💙 #AngelmanSyndrome

[Kate McKenna @kate_m_mckenna]

“We never considered we would outlive Lachlan…We planned our lives around him surviving us” with @janellehmiles

[AngelmanSyndromeAustralia @AngelmanSyndro3]

A life is a life 💙 #covid #RareDisease #disability #angelmansyndrome

[AngelmanSyndromeAustralia @AngelmanSyndro3]

"Family of youngest Queenslander to die with COVID-19 lodges formal complaint about treatment at Redcliffe Hospital" https://t.co/9N785JIv5x

[AngelmanSyndromeAustralia @AngelmanSyndro3]

@ABCthedrum @jessradio Where is the representation of disabled women tonight? They are disproportionately over represented in the population of women who experience abuse. Please include us in the future. Happy to contribute!

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Just posted a photo https://t.co/zAdEYnpdQG

[AngelmanSyndromeAustralia @AngelmanSyndro3]

To our friends and families in Greater Sydney, Blue Mountains, Central Coast and Wollongong - hang in there! We are here for you over these next few weeks. Stay safe. Stay connected ❤️ #COVID #Lockdown #NSW https://t.co/rihjSnTIzG

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Happy Mother’s Day to our Angelman family ‘mums’ of all walks and descriptions. And hugs to everyone who is missing their mum or child today 💜 #mothersday #angelmansyndrome https://t.co/ufPnNJmzTf

[AngelmanSyndromeAustralia @AngelmanSyndro3]

What better front cover for the Herald Sun newspaper than a smiling Elliott ❤️ A fabulous face of Angelman syndrome and the #GoodFridayAppeal #RCH #angelmansyndrome #ASAA @ The Royal Children's Hospital, Melbourne https://t.co/9JGFpPhp4r

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Margaux loves pink & sparkles and is an amazing Ballerina- Princess with a wicked sense of humour; she endlessly loves the Wiggles and the Nutcracker #angelmansyndrome #HiddenAngels #FindYourTribe #ASAA #cureangelman https://t.co/LoBNI1Fhso

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Daniel recharges his family & friends with his energy & attitude, achieving all of this without words. He has a contagious genuine laugh. #angelmansyndrome #HiddenAngels #FindYourTribe #ASAA #cureangelman https://t.co/xSn6xMMayf

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Mendy is energetic, loves fun, action & is super cheeky. He is affectionate and is very in tune with his surroundings & the people around him. #angelmansyndrome #HiddenAngels #FindYourTribe #ASAA #cureangelman https://t.co/q82BbUSdWY

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Just posted a photo https://t.co/HJxoXNixfu

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Zak is happy, bubbly & very cheeky, with an infectious smile & a knowing laugh. He loves the beach, eating out, & spending time with his family. #angelmansyndrome #HiddenAngels #FindYourTribe #ASAA #cureangelman https://t.co/zzpyO8jjLA

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Happy New Year and wishing everyone good health, kindness, and joy in 2021. #angelmansyndrome #covid_19 #vaccine https://t.co/usVMvcTK3V

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Happy International Day of People with a Disability 2020 💙
Recognising that not all disabilities are visible #angelmansyndrome #IPWD2020 #disability https://t.co/gsLPDLZWUI

[AngelmanSyndromeAustralia @AngelmanSyndro3]

@hughriminton Even more sobering for disabled students attending special schools, where risk mitigation strategies and controls are hard to implement

[Every Australian Counts @EveryAustralian]

“The additional stress & financial costs were one thing but the lack of proactive support was really the thing that angered me most. I felt abandoned and invisible.” How did people with disability fare during #COVID19Aus? Great report from @PWDAustralia - https://t.co/XYknRhD8gc

[AngelmanSyndromeAustralia @AngelmanSyndro3]

Great advocacy from @RareVoices and @swanaus for rare disease and disability during COVID-19 pandemic in Australia #RareDisease #angelmansyndrome

[Rare Voices Australia @RareVoices]

How COVID-19 has exacerbated the issues faced by people living with a #raredisease. Features commentary from RVA's CEO, Nicole Millis & two RVA Partner organisations: Heather Renton, CEO of @swanaus & Fiona Lawton, National President of @AngelmanSyndro3: https://t.co/yrxaBrBDy7