Our Fed Govt is not caring for the welfare of its people. If we kept 2000 tax rates, collected all the taxes, didn’t fight dumb wars, we’d have no debt today.
The 4th therapist was a keeper.
ACT is hard for LC. There was a pilot test out of Vanderbilt a few years ago. They had a post-ICU ACT program and were seeing if it could be adapted for LC. I don’t know how it worked out. I think it has merit as a concept, but would need to be slightly tweaked to deal with the odd realities of LC.
This study, using only LC patients from Bateman Horne, is biased to start. It’s LC patients who went to a place that specializes in MECFS, and self-reported on a questionnaire developed there. That’s not a random sample of LC patients & you know it’s biased. https://t.co/0p0ITNxFH7
@sunsopeningband Where IS this data about the “very sickest Long COVID subgroup in RECOVER?”
What you are saying here is not true.
There is no defined “participant cluster” that you describe in RECOVER.
Todd needs shoulder surgery from moving the goalposts so much. Once everyone told him how many different illnesses contain the “hallmark symptoms of MECFS” it became PEM only exists in MECFS, and it’s a special kind of PEM.
Also, words don’t mean what they mean in M.E. Land, since post exertional malaise, a very specific term, doesn’t mean what they say. They need to change the name to SPEM, SPECIAL POST EXERTIONAL MALAISE.
@elljuna@sunsopeningband Go ahead. Define MECFS.
You are saying the IOM 2015, cited affirmatively by @sunsopeningband in this thread, is wrong? Better tell him that.