“Fly Away” - parent of a medically complex child (me) story live on stage in NYC on the theme of “Taking Care” @thenocturnists@BLReview
https://t.co/HkEL4NkSEk
I had the privilege of being part of a live storytelling event in NYC last November hosted by The Nocturnists and Bellevue Literary Review. The theme was "Taking Care" and I shared a story as the parent of a medically complex child. 1/4
It's not a "happy" story, but I hope you see it as a love story, not a sad story. The parent caregiver voice isn't often heard ... this was my opportunity to share a bit of what goes on behind closed doors in the homes of parents caring for (and loving!) 3/4
Shared Struggles, the documentary, 2 more interviews completed. One more family to interview and then we are ready to put this thing together. Hoping to release in early 2025. #onward
10 years after his death and with the extraordinary support of doctors who didn’t give up on finding answers, my son is 1 of 18 kids in the world now identified with a new subset of CMD. Never give up …
https://t.co/L59fQQKEWX
Shared Struggles: The Documentary is making good progress. So far, one family and two of our physician story contributors interviewed. Hope to have filming complete by end of summer and documentary edited and ready for release by year’s end.
I leaned on God throughout Jack’s life, and in death, wherever Jack’s soul resides in the great beyond, I know he is with God, he is okay, and I will see him again. And that is why I can truly say, ‘it is well with my soul,’"
~ @Ann_Schrooten