Ashleen Crowe

PhD student at Centre of Public Health, Queen's University Belfast. Rare disease, communication and information access. Views and opinions are my own.

[Prof Veronica Lambert @VLambertDCU]

Very productive day in @QUBSONM on the #CODECIDE project with the North @QUBelfast & South @DCU @DCUSNPCH team meeting in-person @hea_irl #NSRPproject

[Ashleen Crowe @AshleenCrowe]

@a_j_mcknight @CPH_QUB @RAiNAllIreland Thanks so much @a_j_mcknight - it's been an absolute pleasure working with you and the rare disease team @CPH_QUB. I can't believe I did it! I passed!

[Prof AJ McKnight @a_j_mcknight]

Delighted to share #RareDiseaseNI are one of four teams shortlisted for @QUBelfast's ‘Making an Impact’ award. ~200 nominations were received, so an excellent achievement. Multidisciplinary teamwork! Thanks everyone who helps research drive improvements for #RareDisease :-)

[Dr Julie McMullan @JulieMcMullan11]

Are you a parent/family caregiver of a child with a rare disease and/or complex care needs? Do you have experience with home healthcare during COVID-19? Fill out this survey & let your voice be heard https://t.co/JRkcYVMOBd

[Ashleen Crowe @AshleenCrowe]

@_KatieKerr_ @a_j_mcknight @eshgsociety @NI_RDP @CPH_QUB @HelenMcAneney Thanks @_KatieKerr_ Feel like a proper researcher now!

[Ashleen Crowe @AshleenCrowe]

@a_j_mcknight @eshgsociety @NI_RDP @CPH_QUB @HelenMcAneney Glad that my first conference presentation went well! Exciting to hear from so many who are also trying to ensure patients' needs are met. Thanks AJ!