🅚🅐🅨 💜💦

Rtd PH Nurse/Academic
Living with #CSFLeak #Braininjury #ClusterHeadache #Aracnoiditis #PulsatileTinnitus #PalatalMyoclonus
Grateful...💜
#SuperRecogniser

[🅚🅐🅨 💜💦 @Assidens]

Finally! You can get your fix of Joe Hayden and his hypnotic, dulcit tones🎙🎧📓
Here via #YouTube
https://t.co/ylbjmehEaO
#JoeHayden
#VoiceActor
#VoiceOver
#ASMR
#ShortStory
#shortstorywriter https://t.co/6qTO46WKzw

[UK Health Security Agency @UKHSA]

If you're walking through grassy or wooded areas this summer, be tick aware and make sure you know how to avoid ticks and remove them if they bite. 👇

[🅚🅐🅨 💜💦 @Assidens]

@broadwaybabyto Im so sorry to read this. Thank you for sharing your experiences 😔🙏

[🅚🅐🅨 💜💦 @Assidens]

This is why we cannot go down the #AssistedDyingBill route in the UK 😢

[Kelly @broadwaybabyto]

I’ve had a huge health setback following my move.

My level of function is half what it was before.

The hospital said they would connect me with “resources” to assist with activities of daily living.

There’s a 1.5 year wait list.

MAiD was offered in under a month.

[Prof Ryan @sarasiobhan]

I will be banging on about this for the next week or so (no apology). Here's the plan for the Social Murder Festival hosted by @ManMetUni... 1/3

[🅚🅐🅨 💜💦 @Assidens]

@Shrink_at_Large Plus the secondary trauma it inflicts on wider family.
I know someone who's family member/carer was so traumatised by the PIP assessment process that they witnessed/supported their family member to go through, that THEY needed counselling, as it was so traumatic. Just awful😥

[🅚🅐🅨 💜💦 @Assidens]

@Shrink_at_Large I genuinely don't think anyone who hasn't witnessed the assessment process can even begin to imagine just how horrific it is. In my experience even professional/medics(who 'think' they understand)find it so incredulous as to what they actually put you through in the assessment😢

[Dr Jay Watts @Shrink_at_Large]

No. 1 barrier to work: lack of treatment upstream causing greater disability downstream. Want to talk about reducing mental health disability benefits? Reduce childhood abuse and neglect. Reduce average 12 yr time from first presentation to diagnosis of DID/bipolar/autism/ADHD.

[🅚🅐🅨 💜💦 @Assidens]

@AndrewCallenMD @TheAJNR 👏👏👏

[Andrew L Callen MD @AndrewCallenMD]

New in @TheAJNR :

I’ve never written a paper in quite this format before, but it came from a recurring issue I see in #spinalCSFLeak care.

For selected patients with suspected SIH, the neuroradiologist’s role may need to extend beyond the report.

The task is not just to interpret images, but to integrate the clinical story, prior imaging, myelographic technique, procedural options, and uncertainty into a coherent next step.

In a disease where the tests are imperfect and the techniques are evolving, patient-facing neuroradiology can meaningfully change care.

https://t.co/Ah5mIkT1AK

[🅚🅐🅨 💜💦 @Assidens]

@Hudsonweather @peter_levy @SimonSpark1 Road melting on Mount Street Lincoln this afternoon 🥵
Zoom in! 😲
@LincolnshireCC

[Ben Claimant 💚 Join a Union @BenClaimant]

This heatwave isn't just a weather event. It's a disability rights emergency

- For many disabled people, heatwaves are a threat to life, dignity and safety.

https://t.co/mZB5xTGd75

[🅚🅐🅨 💜💦 @Assidens]

Exactly!
"Where's the campaign for effective treatment for pain"
So much life to live, but so much pain and suffering.
Especially thinking about the @csfleakuk group of patients.
We are so often abandoned by the medical professionals with no effective treatment offered 😢

[Mik Scarlet @MikScarlet]

So bed time. Will I sleep? I can only hope.
To think we exist in a society where people are expected to live with pain like this & the only solution being campaigned for is assisted suicide. Where's the campaign for effective treatment for pain?

[🅚🅐🅨 💜💦 @Assidens]

@MikScarlet Dropped you! 😲 Omg!

[David Nobbs Memorial Trust @NobbsMemorial]

Feeling guilty about your comfort watch sitcoms? Don’t! Apparently there are some psychological benefits such as minimising decision fatigue, so feel free to press play on Reggie Perrin once again…  https://t.co/H56YQu79RA

[Seb Johnson @SebJohnsonUK]

A UK startup can now assess skin cancer from a smartphone!

People have been talking about using AI to cure cancer.

This is the first time I've seen a company actually come close.

Users take a close-up photo of a mole or lesion through the app and it returns one of two results: clear, or a referral for further assessment.

The same decision a dermatologist would make but made autonomously by an AI on a consumer device.

The technology has already been used on 230,000 patients and identified over 20,000 cancers, but this is the first time it's being used on a smartphone.

CRAZY, amazing stuff from the team at @SkinAnalytics

[Spinal CSF Leak Foundation @spinalCSFleak]

To quantify the barriers to care spinal CSF leak patients face, the Foundation collaborated with @AndrewCallenMD and @DanielM737 on a patient survey and paper.

We are thrilled to share that it has been accepted by @TheAJNR!

Abstract here: https://t.co/UgsJV8Jl9z

[Spinal CSF Leak Australia @SpinalCSFLeakAu]

Leak Week Day 6: Research Spotlight

Today we're highlighting an Australian study exploring life with spinal CSF leaks. We're proud that our Chair, Rachel Smith, is a co-author and helped bring patient voices into the scientific literature.

📖 https://t.co/P1v8WLBKjR

[CSF Leak Association @csfleakuk]

❓ What a CSF leak felt like…

“It felt like my head was going to explode… and then suddenly, everything changed.”

A CSF leak can begin without warning — with sudden, severe, life-altering pain. But recognising the signs early can change everything💙

[🅚🅐🅨 💜💦 @Assidens]

@Shrink_at_Large I recall this feeling so well🤦‍♀️ When, in 2013, we as NHS Public Health was TUPE transferred into local councils😭

[Keren Leah @KerenLeah]

"When I was in hospital, I would look out of the window, and a nurse said to me: ‘You're looking, because you see everyone getting on with their daily lives. It’s only when you're in here that you realise being able to lead your normal life is like wearing an invisible crown.’"