Ataxia Support

Hoping to provide support to those with ataxia. In memory of Rick and Shantel who were taken away from us much too soon by this deadly disease.

[National Ataxia Foundation @NAF_Ataxia]

Hobbies and activities may change over time, but adaptations can help people continue doing the things they enjoy. Gardening is one example where small adjustments can make a big difference.

Have a tip to share? Submit it at https://t.co/1ofrFoZGhx
#AtaxiaTipTuesday

[National Ataxia Foundation @NAF_Ataxia]

Atlanta! We'll be there on Saturday, September 19th for Walk N' Roll to Cure Ataxia! Gather your family and friends and join us for a short walk, great people, and good vibes.

Learn more at https://t.co/yf8YcbBrwn

[National Ataxia Foundation @NAF_Ataxia]

PTC Therapeutics recently shared an update on vatiquinone, its investigational therapy for Friedreich's Ataxia (FA). They announced that they are initiating a new clinical trial for individuals living with FA from 7 to 21 years of age.

Learn more at https://t.co/zpPJMaAR1f

[National Ataxia Foundation @NAF_Ataxia]

Summer is here...and so is your chance to make twice the impact!

Thanks to a few generous donors, every gift made during our Summer Match Challenge will be matched dollar for dollar, up to $100,000, throughout the month of June.

Donate now at https://t.co/hnKg41cF2R

[National Ataxia Foundation @NAF_Ataxia]

Simple adjustments to everyday routines can sometimes make activities more comfortable and manageable. Our community continues to share practical ideas that may help others navigate daily life with Ataxia.

Have a tip to share? https://t.co/1ofrFp0e75
#AtaxiaTipTuesday

[National Ataxia Foundation @NAF_Ataxia]

Have some questions about Ataxia that you've been wanting to ask? Join us later this month as Dr. Susan Perlman helps us learn more about Ataxia.

Register: https://t.co/I6eHXoU19b

[National Ataxia Foundation @NAF_Ataxia]

Relationships are an important part of life - and having a disability doesn’t change that.

In this recorded webinar we explore the unique challenges people with disabilities may face in dating and relationships.

Watch now: https://t.co/aDenJF9OzI

[National Ataxia Foundation @NAF_Ataxia]

The EveryLife Foundation for Rare Diseases is inviting families to apply for travel stipends to attend Rare Family Day 2026 on October 3.

Learn more and apply: https://t.co/VXSchGSX6f

[National Ataxia Foundation @NAF_Ataxia]

CONFIRMED: St. Louis Walk N' Roll is back! Join us at Kirkwood Park at 9:30am on September 5th for a fun morning of awareness and impact.

Learn more at https://t.co/Zdd3isGexG

[Ataxia Centre - UCL Institute of Neurology @AtaxiaCentreUCL]

After using this account for 7 years, we will be closing our Twitter account and move fully to Bluesky. Please join and follow us here: https://t.co/1DdgkSaREv

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

This is Danne's Story. Thank you very much to Danne for sharing your #AtaxiaStory with us and helping us raise awareness 💙

Danne's full story will be coming soon to
https://t.co/g5Rv67EZbO

#Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

We look forward to supporting #VolunteersWeek at #Ataxia / #RareDisease #Patient #Charity based in Wales with a #global impact, run by AMAZING #Volunteers #Wales
https://t.co/fiH7wEf7KE @Ataxia_and_me
@volunteersWeek

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

Some patients with ataxia are neurodegenerative, find out what that means:

#Ataxia #RareDisease #Awareness #PatientsHelpingPatients #StrongerTogether #NeuroDegenerative #Rare

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

A bit of Saturday evening #Fun

spot the difference

#Ataxia awareness

[Carers Support West Wales @carerssupportww]

It's just 8 days until Carers Week 💙

Visit the website to find out how to get involved.

https://t.co/0e9KcjcEoS

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

Today is the start of #VolunteersWeek @volunteersWeek @Volunteers_Week
A big Thank you to our #Volunteers We support the week at #Ataxia / #RareDisease #Patient #Charity #Wales

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

Some #Motivational_Monday inspiration to kick off summer 💙

#Ataxia #Awareness #RareDisease #StrongerTogether #PatientsHelpingPatients #MovementDisorder

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

During #VolunteersWeek @volunteersWeek @Volunteers_Week
@wcvacymru
We celebrate our (past and present) #Volunteers As we support the week at #Ataxia / #RareDisease #Patient #Charity #Wales

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

This edition of #Tuesday_Tips is for anyone who may have difficulty swallowing.

If you have any #AtaxiaTips that you would like to share, leave them in the comments.

#Ataxia #Awareness #RareDisease #PatientsHelpingPatients #StrongerTogether #HealthCare

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

For #VolunteersWeek @volunteersWeek @Volunteers_Week

We are #Celebrating our (past and present) #Volunteers
A big Thank you to Hannah , who sent these kind words
We support the week at #Ataxia / #RareDisease #Patient #Charity #Wales
https://t.co/fiH7wEf7KE @Ataxia_and_me