Hobbies and activities may change over time, but adaptations can help people continue doing the things they enjoy. Gardening is one example where small adjustments can make a big difference.
Have a tip to share? Submit it at https://t.co/1ofrFoZGhx
#AtaxiaTipTuesday
Atlanta! We'll be there on Saturday, September 19th for Walk N' Roll to Cure Ataxia! Gather your family and friends and join us for a short walk, great people, and good vibes.
Learn more at https://t.co/yf8YcbBrwn
PTC Therapeutics recently shared an update on vatiquinone, its investigational therapy for Friedreich's Ataxia (FA). They announced that they are initiating a new clinical trial for individuals living with FA from 7 to 21 years of age.
Learn more at https://t.co/zpPJMaAR1f
Summer is here...and so is your chance to make twice the impact!
Thanks to a few generous donors, every gift made during our Summer Match Challenge will be matched dollar for dollar, up to $100,000, throughout the month of June.
Donate now at https://t.co/hnKg41cF2R
Simple adjustments to everyday routines can sometimes make activities more comfortable and manageable. Our community continues to share practical ideas that may help others navigate daily life with Ataxia.
Have a tip to share? https://t.co/1ofrFp0e75
#AtaxiaTipTuesday
Have some questions about Ataxia that you've been wanting to ask? Join us later this month as Dr. Susan Perlman helps us learn more about Ataxia.
Register: https://t.co/I6eHXoU19b
Relationships are an important part of life - and having a disability doesn’t change that.
In this recorded webinar we explore the unique challenges people with disabilities may face in dating and relationships.
Watch now: https://t.co/aDenJF9OzI
The EveryLife Foundation for Rare Diseases is inviting families to apply for travel stipends to attend Rare Family Day 2026 on October 3.
Learn more and apply: https://t.co/VXSchGSX6f
CONFIRMED: St. Louis Walk N' Roll is back! Join us at Kirkwood Park at 9:30am on September 5th for a fun morning of awareness and impact.
Learn more at https://t.co/Zdd3isGexG
After using this account for 7 years, we will be closing our Twitter account and move fully to Bluesky. Please join and follow us here: https://t.co/1DdgkSaREv