Autism and Accountability

Autism info, currently reposting coverage of #IACC from Thinking Person's Guide to Autism's bluesky

[Autism and Accountability @AutAndAcc]

Final outcome: they are going to incorporate some minor edits to the plan, then recirculate - but the overall plan has been approved

[Autism and Accountability @AutAndAcc]

The moment of truth - #IACC is trying to move towards a vote on the Strategic Plan. Judith Cooper, from National Institute on Deafness and Other Communication Disorders, is raising the concern that many federal members had no opportunity to read the written comments - just AI

[Autism and Accountability @AutAndAcc]

They are moving to a vote. Once again, they are using Zoom polling. This does not allow the public to see who is voting how. A massive problem, and they have still not provided voting records from the last meeting

[Autism and Accountability @AutAndAcc]

Christina Chacon from Administration for Health Research and Quality is also expressing concern that many of these federal programs have no budget. Dr. Fogel simply responding that she's willing to lobby for more resources.

[Autism and Accountability @AutAndAcc]

(From TPGA's bluesky) Alison Marvin also weighing in from Social Security Administration - they had been given partial responsibilities for initiative on "HCBS, Medicaid, Transition, and Caregiver-Succession Alignment" and they simply don't have involvement in housing planning.

[Autism and Accountability @AutAndAcc]

Addressing Judith Cooper's concern about budget items, Dr. Fogel suggests creating an "additional budget" of $12 million to support communication domain (note - the overall budget they're proposing is $633 million - so $12 million is less than you'd think)

[Autism and Accountability @AutAndAcc]

There is no funding recommendation attached to ANY of these

[Autism and Accountability @AutAndAcc]

(From TPGA's bluesky)#IACCAugust2026 #IACC discussing Part V of the Strategic Plan for autism research - "Life Course Domains" - the section addressing services and supports, housing, communication, everything other than biomed

[Autism and Accountability @AutAndAcc]

One good suggested revision - adding a recommendation for exploring options to let autistic adults remain in existing family housing following death of a caregiver. Great idea. At the risk of repeating myself... WHERE IS THE FUNDING?