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I have a free newsletter if you'd like to subscribe for updates about neuroaffirming community events, research & everything monotropism related!
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This account is no longer active.
I have a free newsletter if you'd like to subscribe for updates about neuroaffirming community events, research & everything monotropism related!
Please continue to support & follow me on Bluesky.
https://t.co/tJtFQa74DZ
https://t.co/W1f1xAMmv4
I wonder how many lives would be saved by treating #PANS & #PANDAS properly? I wonder if my daughter would have a happy life, if she'd be able to go to school? I wonder if she would still be so consumed with #ocd she sometimes cannot move? #PansPandasHour
This is so important , thank you to everyone involved. @DaveR_Lichfield I have contacted you directly about this 3 times previously but without reply. Could you help and can we discuss please ?
Debate: Should learning disabilities be separated from autism in healthcare policy?
Autism and learning disabilities are grouped in healthcare policies because of their high co-occurrence rate, even though they are entirely different from one another.
https://t.co/UVLDvOPqEF
Rest can become a radical act in a world that often equates our worth with productivity, especially for Autistic people, where our ways of resting may look different.
Reclaiming Rest: Autistic Burnout, Monotropism, and Resistance
Inspired by #NapMinistry
https://t.co/PHIAOgtsG5
Rest can become a radical act in a world that often equates our worth with productivity, especially for Autistic people, where our ways of resting may look different.
Reclaiming Rest: Autistic Burnout, Monotropism, and Resistance
Inspired by #NapMinistry
https://t.co/PHIAOgtsG5
When your child demonstrates emerging mental health challenges under the age of 14, you enter a world of “watch and wait”, “it’s your anxiety Mum, not theirs”, “it’s just a phase, have you considered your parenting approach?”, “they’re fine at school”, “don’t worry, they’re reaching expected levels”…
And yet. You know your child is struggling. Your Mums instincts are jangling. Things feel off. You’ve already sat back and hoped it was a phase. You’ve tried different parenting techniques, increased social time, decreased social time. You’ve tried everything and you know professional input and support is needed.
Everyone agrees. Referral in. You wait.
Weeks or months go by. Someone is assigned. They’re great. Things improve. But it’s a time limited intervention. Your child starts unravelling again as they become unsettled the thing they’ve connected with is being withdrawn. The What Ifs consume once more. Sympathetic professionals refer you to another service. With an even longer waiting list.
Needs escalate and extend beyond the worst point previously. Now your child is older phase transitions are more significant but you know it’s unlikely to happen. You are witness to a car crash you’re unable to prevent. Again.
And so it goes on.
Yes. Early intervention. Yes timely appropriate support. But. It must be continuous, appropriate. And available.
Can you imagine accessing physiotherapy and being told “you’ve reached your quota, you can’t see us any more”?
Access to and discharge from appropriate mental health services is one of the greatest scandals of our time. Our children, young people and families deserve better. They need better.
If there was ever a time
To stand together
If there was ever a time
Its tonight
If there was ever a time
To hold your brothers and your sisters
Then the time is right
—The Armstrongs
https://t.co/p4Z42zvJrq
@autisticrealms @emgntdivergence (7/8) se are just little rock pools of rest and respite where you can unmask and be yourself in your safe place with safe people who understand you – as you continue to battle against the constant crashes and tides of neuronormativity that can feel so heavy and pull us down.
@autisticrealms @emgntdivergence (6/8) – ‘monotropic split’.
I do believe the more you know about your Autistic/ AuDHD identity and the more you understand the theory of monotropism, the more you can help with the healing process. You can begin to find ways to work with your flow and not against it –even if the
@autisticrealms (5/8) not suited to being monotropic. Constantly dividing attention resources to get through your day is exhausting for monotropic people; it can lead to the concept Tanya Adkin developed and has written about with @emgntdivergence
@autisticrealms (4/8) e wrote, ‘You might not recover from burnout. Ever‘, but that doesn’t mean you can’t find new ways of living and navigating life.
It feels almost inevitable that I will continue to have cycles of burnout as the whole of society, and the way the world works is generally just
@autisticrealms (3/8) to the same place and state I once was is impossible. Too much has changed. My burnouts are deep; they have changed my very core way of being and experiencing. There has been a whole seismic shift in how my sensory system responds to life and what it needs. As Dr Devon Pric