Autoimmune Registry

We're a nonprofit advancing research across 100+ autoimmune diseases by connecting patient data with science to improve diagnosis, treatment, and outcomes.

[Autoimmune Registry @AutoimmuneReg]

📣 Happening in less than 1 hour.

How do we catch kidney involvement before it does lasting harm?

@nkf 's Elizabeth Montgomery, live with the Autoimmune Registry at 12 PM ET / 9 AM PT.

Free, and recorded for everyone who registers.
https://t.co/SXZUgsFbxg

[Autoimmune Registry @AutoimmuneReg]

🔍 Nearly 90% of people with kidney disease don't know it

Thursday, 12 PM ET: @nkf's Elizabeth Montgomery on catching kidney involvement earlier, which includes lupus, IgAnephropathy, ANCA vasculitis and antiGBM disease

📅 Free & Recorded for Registrants
https://t.co/SXZUgsFbxg

[Autoimmune Registry @AutoimmuneReg]

Up to 100,000 Americans have myasthenia gravis, and many wait over 3 years for a correct diagnosis, even as new FDA-approved treatments continue to emerge.
Read more: https://t.co/nxtaNzrgei

#MGAwarenessMonth #AutoimmuneDisease

[Autoimmune Registry @AutoimmuneReg]

New research shows lupus patients who had a real say in their treatment decisions reported measurably better quality of life after one year.

Your voice in the exam room isn't just nice to have. It affects how you feel.

Read more: https://t.co/942nL5A217

#LupusAwareness

[Autoimmune Registry @AutoimmuneReg]

Lupus patients with kidney involvement face more than 4x the cardiovascular event risk of people without lupus. Standard risk calculators, built for older men, miss the young women who make up most lupus patients. Read more: https://t.co/wloeZz7MZE #LupusAwarenessMonth

[Autoimmune Registry @AutoimmuneReg]

It’s officially Lupus Awareness Month. 💜
Lupus is complex, unpredictable, and often invisible—but the millions of people living with it shouldn't be. This May, we’re dedicated to raising awareness, sharing vital data, and supporting every lupus warrior.
#LupusAwarenessMonth

[Autoimmune Registry @AutoimmuneReg]

Why does lupus look so different for different people? 🧬 From the biology of trauma to systemic gaps in care, SLE is shaped by race, sex, and history as much as immunology. This #LupusAwarenessMonth, we’re looking at the "many faces" of lupus. Read more on our website.

[Autoimmune Registry @AutoimmuneReg]

An estimated 1.5 million Americans have lupus — and the average time to diagnosis is still 6-7 years. In 2025, that's not acceptable. This May, add your data to our Lupus Diagnostic and Treatment surveys and help change that: https://t.co/n7EeH9Tu4z
Read more in our newsletters.

[Autoimmune Registry @AutoimmuneReg]

For Sjögren's Awareness Month, add your voice to the narrative. Your story matters — record a short video and share what living with this disease is really like. 🎥 https://t.co/VuBJU3G3Tp
#SjogrensAwareness #PatientVoices

[Autoimmune Registry @AutoimmuneReg]

An estimated 4 million Americans have Sjögren's disease — and many may be undiagnosed. Potentially the second most common autoimmune disease in the US, it is systemic and can significantly impact patients' quality of life. Read more: https://t.co/Mgc248vmle

[Autoimmune Registry @AutoimmuneReg]

Statins—already commonly prescribed for cardiovascular issues—may also reduce inflammation markers and disease activity for lupus patients, particularly in patients under 40.
Read our newsletter here: https://t.co/mQ9y7xFHqS
#Lupus #AutoimmuneDisease

[Autoimmune Registry @AutoimmuneReg]

Chronic inflammation raises cancer risk by 32% for autoimmune patients. Women with autoimmune disease have up to 5× the risk of Hodgkin's lymphoma.

Read more in our latest newsletter: https://t.co/TYV80rNAQr

#AutoimmuneDisease #ChronicIllness

[Autoimmune Registry @AutoimmuneReg]

What does it take to champion a disease the world overlooks?

John Muller, Founder of https://t.co/Bwg46rEZ75, joins us to talk rare disease advocacy, community-led research & fighting for patients against the odds.

April 16 | 12–1 PM ET | Free🔗Bio
#AutoimmuneDisease

[Autoimmune Registry @AutoimmuneReg]

We believe the only way to solve the "autoimmune mystery" is through the power of community. Don't let your experience go unheard. Help us bring clarity to the millions living with autoimmune conditions.
Join the movement. https://t.co/4QwRR28bdf
#AutoimmuneAwarenessMonth

[Autoimmune Registry @AutoimmuneReg]

How many years have we spent telling ourselves we were "just tired" and how many of us have been told by doctors that we're "just stressed"? All the while, our biology was fighting a war we didn't know and weren't looking for.
Comment ❤️ if you can relate.
#AutoimmuneAwareness

[Autoimmune Registry @AutoimmuneReg]

A diagnosis (or four). As Selma Blair points out, autoimmune diseases rarely travel alone.
Cormobidities is one of the big reasons we created the Autoimmune Registry. Join today and help us bring more clarity to these diseases: https://t.co/n7EeH9Tu4z
#AutoimmuneAwarenessMonth

[Autoimmune Registry @AutoimmuneReg]

"Chronic pain is no joke"--these words resonate with millions living with autoimmune diseases.
What is one thing you wish people understood about your "invisible" symptoms? Share in comments.
#Fibromyalgia #AutoimmuneAwarenessMonth

[Autoimmune Registry @AutoimmuneReg]

Bexi shares her experience being gaslit and sometimes even gaslighting herself into thinking she was just being lazy. She discusses falling into the trap of victimhood and what she did to finally validate herself. Share a ❤️ in the comments if you can relate. #AutoimmuneAwareness

[Autoimmune Registry @AutoimmuneReg]

Autoimmune disease doesn't come with a manual, and it can get very messy. One day you’re managing the complexity of systemic symptoms, and the next, you’re just trying to get through the hour.⁠
Christina Applegate shares her honest struggles with MS.
⁠#AutoimmuneAwarenessMonth

[Autoimmune Registry @AutoimmuneReg]

Autoimmune diseases often affect multiple systems and cause symptoms throughout the body. Dry skin patches, fatigue, and brain fog can all be linked to autoimmune issues.

Read Salma's story with Hashimoto's disease here: https://t.co/h8jRq0l8TU

#AutoimmuneAwareness #Hashimotos