May is #EDSAwarenessMonth.
After several years of trying to find answers, I received a formal hEDS dx this year. The first hEDS chart is a good representation of my life with dysautonomia/POTS thrown in. A friendly reminder that disabilities can be dynamic and non-visible.
The EDS Spectrum.
The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of #EDS is associated with different symptoms and characteristics.
Some features are seen across all types of #EhlersDanlosSyndrome, including #jointhypermobility, skin hyperextensibility, and tissue fragility. Other symptoms are only observed in specific types of EDS.
There are also many other medical conditions that are often seen in people with EDS. These include types of dysautonomia and mast cell diseases. These are often called comorbidities or comorbid conditions.
There are no disease-specific treatments for any type of EDS, so EDS is managed by addressing each person’s symptoms. The Ehlers-Danlos syndromes can cause a variety of symptoms in different areas of the body. Therefore, people with a type of EDS often require multiple providers in different specialties to manage their care.
Even within the same type of EDS, two people may have very different symptoms and respond differently to different management strategies.
Learn more here: https://t.co/hkadA9VH9j
#MyEDSChallenge #ZebraStrong #MedEd #MedTwitter
BREAKING: Joe Burrow and the #Bengals have agreed on a 5-year, $275 Million extension that makes him the highest-paid player in NFL History, per ESPN. 🐅🏈 #WHODEY#ThatsMyQB
Just six months after being diagnosed with leukemia, Brixton Woods, who is now in remission, had his wish come true by scoring TDs and hitting the Griddy with @Bengals star Ja'Marr Chase 🧡
@Real10jayy__ | @MakeAWish
A four-alarm fire late Wednesday engulfed Sk8 Liborius Church, a towering historic church that had been converted into an indoor skatepark north of downtown St. Louis: https://t.co/ZFFESt6imN
📹 @PDPJ
AP NFL Coach of the Year voting breakdown:
5 points for 1; 3 points for 2; 1 point for 3.
First-place votes:
1. Brian Daboll - 16
2. Kyle Shanahan - 12
3. Doug Pederson - 5
4. Sean McDermott - 7
5. Nick Sirianni - 6
6. Kevin O'Connell - 1
7. Dan Campbell - 1
8. Andy Reid - 2
The same Ron Torbet led officiating crew that hosed the Bengals tonight also made this call against the Bengals late in last year’s Super Bowl. #RuleThePlayoffs