BCM Families

Connecting people with Blue Cone Monochromacy toward a gene therapy

[BCM Families @BCM_Families]

We are happy to celebrate with you 5 years of BCM Families Foundation!
We also want to remind you that today, 20th of May, is International Blue Cone Monochromacy Awareness Day.
We are rare but together we are strong! And together we can reach a #cure4BCM!

[BCM Families @BCM_Families]

This Thursday is Rare Disease Day! Share our posts and be part of finding a cure for BCM. Take a minute to spread awareness today! #BCMFamilyFoundation #Cure4BCM #GiveToday

[BCM Families @BCM_Families]

YOU CAN HELP! If you live in the US, check out the RareAction site for Rare Disease Day events and activities in your state. Be part of spreading awareness about BCM! Visit https://t.co/A1cAYFG3eD…/state-profiles/

[BCM Families @BCM_Families]

The majority of 30 million people affected by rare diseases are children. Correct diagnosis by pediatricians can impact lives and help with cures. Share this post to spread awareness to your friends and family! #February28 #RareDiseaseDay #Cure4BCM

[BCM Families @BCM_Families]

1) Dowload the BCMFF Flyers here: https://t.co/Q12yA2g2V8
2) Go to a local children hospital on Feb 28th at the Ophthalmology Department;
3) Give BCMFF flyers to Clinicians and take a picture;
4) Post your pictures on our FB Page...you might win a prize!

[BCM Families @BCM_Families]

RDD2019! Our event will focus on spread awareness on our condition. We all know that because of the fact that BCM is a rare genetic disease, most clinicians do not know enough about it, which leads to a long time between detecting symptoms and determining a correct diagnosis.

[BCM Families @BCM_Families]

We look forward to a new year where BCM will be no longer rare, but extinct. You're invited to be part of the solution. https://t.co/PuwmIt1CTW

[BCM Families @BCM_Families]

A look into what some children or adults with BCM take in this Christmas. Many are legally blind, but some see like this and a range in between.Having a rare genetic disease means that spreading awareness is even more important. Thanks for caring about those with BCM! #cure4BCM

[BCM Families @BCM_Families]

Truly a gift that pays it forward. Give today in honor of a family member or friend at https://t.co/PuwmIt1CTW

[BCM Families @BCM_Families]

Do you know someone with BCM? Share this post and spread awareness! Support finding a cure at https://t.co/PuwmIsK1vm
#cure4BCM

[BCM Families @BCM_Families]

Only one day left!
Please, join and support BCMFF for a #cure4BCM during #GivingTuesday

[BCM Families @BCM_Families]

"You see all the beautiful colors of the rainbow. I can only imagine what they must look like. Please help me see for myself with a #cure4BCM"

Please donate!
#GivingTuesday

[BCM Families @BCM_Families]

Wishing you all a memorable thanksgiving!

[BCM Families @BCM_Families]

#Cure4BCM is not a gamble. Expert BCM researchers are on BCM Family Foundation's Scientific Advisory Board. Please help BCM boys everywhere by donating. https://t.co/YHeE7PSv6V

[BCM Families @BCM_Families]

We are learning to see endless possibilities, including #cure4BCM; but we still can't see the blackboard, transportation signs, or posted menus.

Please help #cure4BCM become real --donate to BCM Families Foundation, this #GivingTuesday !

[BCM Families @BCM_Families]

While #GivingTuesday reminds us about the importance of giving, we also have Thanksgiving, a holiday that allows us to reflect and share what we are grateful for. Please donate! https://t.co/YHeE7PSv6V

[BCM Families @BCM_Families]

"I have it all. Family, love, and faith. Now all I need is a #cure4BCM to make my life complete. Please donate!" #GivingTuesday

[BCM Families @BCM_Families]

@GivingTues is an international day of giving, kicking off the holiday season. Encourage friends to choose BCM as a way to give and change lives this November 27. You don't have to wait to give, either! Donate now at https://t.co/PuwmIt1CTW

[BCM Families @BCM_Families]

Only 3 days are left to ThanksGiving! Please support BCMFF and help eredicate this disease!
#cure4BCM !