Biomedical Ethics Research Group

Official account of the Biomedical Ethics Research Group, Murdoch Children's Research Institute. Views expressed are our own and do not represent those of MCRI.

[Biomedical Ethics Research Group @BERG_MCRI]

Check out our new paper where we analysed submissions sent to the Senate Committee that informed drafting of the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021 @JemimaAllen_ @DanyaVears @MCRI_for_kids @UniMelbMDHS https://t.co/kXXVv30gqC

[Biomedical Ethics Research Group @BERG_MCRI]

Check out the new position statement by the Human Genetic Society of Australasia on Genetic Carrier Testing for Recessive Conditions led by @DanyaVears with @biomedethics @Amcinerneyleo @jacobs_chrisj and Jackie Boyle https://t.co/gGXNUimsVg

[Dr Fiona Lynch, PhD MGenCouns @genetic_Fi]

Shared just a snippet of our recent work yesterday at #ICG2023

Reanalysis of genomic data is so beneficial, but there are practical and ethical issues to consider #genechat

[Biomedical Ethics Research Group @BERG_MCRI]

New research analysing the first porcine cardiac xenotransplantation, with BERG’s Chris Gyngell, @konstantinov_ie, @juliansavulescu, Prof Megan Munsie, Prof Misao Fujita, and Dr. Carrie Thiessen.
https://t.co/0CiLlnWPOh

[Dave Coghill @dave_coghill]

Looking at some of the issues around overdiagnosis/misdiagnosis of ADHD through the lens of an ethicist. Great to work with @CPAGyngell and Jonathan Payne on this. Hope it stimulates conversation @UniMelbMDHS #ADHD https://t.co/YLIdqcyn0U

[A/Prof Danya Vears @DanyaVears]

Huge thanks to the #ESHG2023 organisers for letting @CelineLewis23 and I on the decks at the conference party and to the attendees for bringing their best moves to the D-floor! We had the best time 😁

[Biomedical Ethics Research Group @BERG_MCRI]

Thanks to co-authors Sachini Poogoda @genetic_Fi @ZornitzaS @NeonatalEthics @juliansavulescu @DanyaVears & Chris Gyngell

[Biomedical Ethics Research Group @BERG_MCRI]

Rapid genomic testing poses many ethical challenges – we surveyed intensivists from around the world to see what they think. Read about their attitudes in our new paper out now! https://t.co/C9FUKUj0Qm

@MDPIOpenAccess @MCRI_for_kids @UniMelb

[Biomedical Ethics Research Group @BERG_MCRI]

New Position Statement issued by @HGSAAustralasia providing guidance on genetic carrier testing for recessive conditions in adults and children https://t.co/EOX3SBBYZZ

[Biomedical Ethics Research Group @BERG_MCRI]

New paper out by @KatieArkell10 @DanyaVears @ZornitzaS and Chris Gyngell on ethical issues relating to use of rapid genomic sequencing in critically ill children https://t.co/dvrr0XEE4K @MCRI_for_kids @UniMelb

[Biomedical Ethics Research Group @BERG_MCRI]

@MCRI_for_kids @UniMelb @PeterMacCC @VCCCAlliance @AusGenomics @CBMER_KULeuven

[Biomedical Ethics Research Group @BERG_MCRI]

📣 More data from our study exploring Australian public perspectives on #genomic data storage and sharing - OUT NOW in @ejhg_journal

Read it here: https://t.co/eXCBELJpdF

@genetic_Fi @YanMeng27 @drstephbest @IliasGoranitis @juliansavulescu Chris Gyngell & @DanyaVears

[Biomedical Ethics Research Group @BERG_MCRI]

Just out! Our postdoc @DanyaVears along with Isabelle Budin Ljosne and Nina Hallowell, led the development of a practical checklist for return of results from genomic research in the European context @UniMelb @MCRI_for_kids @CBMER_KULeuven
https://t.co/aVu7JOI39D

[Biomedical Ethics Research Group @BERG_MCRI]

Should we offer secondary findings from #genomics in children? What do parents want to know?

Read our latest blog post outlining some of our recent research on this!

[Australian Genomics @AusGenomics]

📚 “Offering secondary findings from genomic testing in paediatric settings” – part 3 of the #AQuestionofEthics blog is out now! 🧬

@DanyaVears @drdavidamor @drlildownie @BERG_MCRI @MelbGenomics
#genomics #blog #genomictesting #secondaryfindings

https://t.co/SkSjx9MM7M

[Biomedical Ethics Research Group @BERG_MCRI]

Featuring BERG fellow Chris Gyngell!

[Biomedical Ethics Research Group @BERG_MCRI]

Data sharing is so important for #genomics - check out the next blog in our series on this topic!

In this piece, we explore the pros and cons of #bigdata sharing, and what the Australian public thinks about it!

[Australian Genomics @AusGenomics]

📚 Part 2 of #AQuestionofEthics #blog explores #bigdata in #genomics: to share or not to share? 🧬

@ZornitzaS @genetic_Fi Chris Gyngell @DanyaVears @MCRI_for_kids @MelbGenomics

https://t.co/2RnYwYuJBD

[Biomedical Ethics Research Group @BERG_MCRI]

Read our latest blog post exploring the #ethics issues of #consent for #genomictesting

Courtesy of @AusGenomics by co-authors @genetic_Fi @DanyaVears @ZornitzaS and Chris Gyngell

[Australian Genomics @AusGenomics]

#AQuestionofEthics - new blog explores #ethical issues facing families when considering #genomictesting for their child. 🧬🧬

📚 Part 1/4 – Should parents be allowed to decline genomic testing for their children? Out now!
#genomics #blog #ethics #consent

https://t.co/XJRosGZ5X9

[Biomedical Ethics Research Group @BERG_MCRI]

Interested in clinician perspectives on decision-making in paediatric home mechanical ventilation? Check out this paper by Juliette Jeffreys, Mayukh Rahman, @DanyaVears @BigjohnMassie https://t.co/5bdbOVIpVE

[Biomedical Ethics Research Group @BERG_MCRI]

Should children with hearing loss undergoing exome sequencing also be offered secondary findings? Lauren Notini @DanyaVears @ClaraGaff and @juliansavulescu asked health professionals offering this testing what they thought @MCRI_for_kids @UniMelb
https://t.co/17xhM8CmHg

[Biomedical Ethics Research Group @BERG_MCRI]

@MCRI_for_kids @UniMelb @PeterMacCC @VCCCAlliance @AusGenomics @CBMER_KULeuven

[Biomedical Ethics Research Group @BERG_MCRI]

What do the Australian public think about #genomic data storage and sharing?

Check out our recent paper answering this question from co-authors @genetic_Fi @YanMeng27 @drstephbest @IliasGoranitis @juliansavulescu Chris Gyngell &
@DanyaVears

[Dr Fiona Lynch, PhD MGenCouns @genetic_Fi]

Data sharing is essential for #genomics - the Australian public are mostly supportive, but concerned about how the data might be misused.

Read more in our recent study: https://t.co/9pqs7e3rl3