BOSAwarenessDay

6 April is Bohring-Opitz Syndrome Awareness Day. Raising awareness for patients, families and carers around the world that are affected by this rare disease.

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Newsletter ASXL Registry https://t.co/1yyKZLOlUD

[BOSAwarenessDay @BOSAwarenessDay]

Long awaited BOS publication https://t.co/cm3YHaSXS8

[BOSAwarenessDay @BOSAwarenessDay]

ASXL Puberty Survey https://t.co/PKvBXOCT0y

[BOSAwarenessDay @BOSAwarenessDay]

11 years ago in 2011 https://t.co/CE9jKm4RZr

[BOSAwarenessDay @BOSAwarenessDay]

Rare Disease Day 2022 https://t.co/xOtaHVsSCl

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Hola, amigos, fundación BOS de España https://t.co/HpQGfG7ElZ

[BOSAwarenessDay @BOSAwarenessDay]

2021 ASXL Family Conference – video https://t.co/XDXHDKp1ml https://t.co/rcnTpBidyL

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“We really aren’t different” https://t.co/afxvOI48HR https://t.co/Npnv9UJRBg

[BOSAwarenessDay @BOSAwarenessDay]

Retinal detachment to chronic self-injurious behavior https://t.co/mO9QuOIRya

[BOSAwarenessDay @BOSAwarenessDay]

Elaney’s Story https://t.co/uUfFnQTsMV

[BOSAwarenessDay @BOSAwarenessDay]

10 Years BOS Timeline https://t.co/U1ihk88th8

[BOSAwarenessDay @BOSAwarenessDay]

RARE Publications https://t.co/Uw2zB9H0U7

[BOSAwarenessDay @BOSAwarenessDay]

ASXL Registry Newsletter https://t.co/Ba1MdTHlER

[BOSAwarenessDay @BOSAwarenessDay]

RDD 2020 BOS video https://t.co/6GUxJIjZ9w

[BOSAwarenessDay @BOSAwarenessDay]

BOS and monogenic obesity https://t.co/wSYoReHajf

[BOSAwarenessDay @BOSAwarenessDay]

Infant Massage Techniques https://t.co/jcxYSwuEnw

[BOSAwarenessDay @BOSAwarenessDay]

Thank you Eva for being here … https://t.co/6uCwXW8yEu

[BOSAwarenessDay @BOSAwarenessDay]

Only a few days to go https://t.co/Z3EbnzNDzT

[BOSAwarenessDay @BOSAwarenessDay]

Last minute project https://t.co/JYh6coTbIQ

[BOSAwarenessDay @BOSAwarenessDay]

Mother’s Day https://t.co/pZuitpjD2V