The ECFS has published 4 papers, updating standards for the care of people with CF. Covering everything related to living with and caring for people CF they are a great source of information for all CF teams. More information on: https://t.co/NBo2uplshK
Today, NICE have given approval for the life-changing #cysticfibrosis modulator drugs to be made available on the NHS in England. This follows many years of campaigning by Cystic Fibrosis Trust and people right across the CF community.
https://t.co/x7TV04xqXU
“You don’t get a day off from cystic fibrosis, it’s always there.”
Charlotte, who features on the posters for our ‘No Day Off’ campaign, shares the reality of living with #cysticfibrosis as well as what she would do if she had a day off from CF.
➡️ https://t.co/UIFCjUDoiP
Important information regarding Creon availability. At BWC we are working hard to ensure all our families continue to have access. More information for our families will be sent shortly.
We have updated our website today to provide the latest information about Creon availability, and what to do if you are experiencing difficulties in accessing the medications. (1/3)
➡️ https://t.co/hZj2aQsIH9
We currently have 18 clinical trials on the Trials Tracker. These studies are looking for lots of people to take part, including children and people who are not taking CFTR modulators.
You can search all UK CF clinical trials on our website.
➡️ https://t.co/EYH4tYbhfb
NEWS: Designed to revolutionise respiratory care, the Cystic Fibrosis Team from @nhsswft and @nhsuhcw, in collaboration with @TheHydrantUK, have developed a pioneering device called HydroBubble. Read more: https://t.co/KIKpweRQ16
Whooping cough (pertussis) cases are currently very high, & the disease can be life-threatening for newborn babies. If you're pregnant, it's important to take up the #Pertussisvaccine when offered. It helps protect your baby in their first weeks of life https://t.co/jWQC8JW9jA
We launched our Baby Box last year to support babies and toddlers aged up to 3+ in hospitals and contribute to a feeling of normality. We've had some fantastic results!
👉🏻 Find out more about the impact of our Baby Box in our NEW impact report: https://t.co/mkp2xFbIGb
Your impact matters!
Every contribution, no matter how small, adds up to meaningful change in healthcare. Believe in the power of positivity and the difference you and your team can make. 💪
@RoyLilley@gbtpo