A big change is happening for CFers around the world. Trikafta is spreading and becoming Kaftrio bringing along a lot of hope for the future. How realistic is it? https://t.co/0Rjg8RPsUR
@MHBloggerRT@pixee_pea I journaled my experiences with this amazing new treatment that is meant to be life-changing for CFers as it ended up being an incredible change. A bit for the best and a bit for the worst...
#cf#trikafta#kaftrio
https://t.co/AsNb1VQmg7
@jm_hanisch The one I'm using to talk about my family/father issues! For some reason, I also decided to write the chapters in the first person and I am so resistant to step in his shoes haha
@exposewrite Hello! Just published a post on Trikafta, the brand new CF treatment that is meant to revolutionise our lives. This is the first treatment that works on the root problem! It promises a lot...
#cf#trikafta#kaftrio#triplecombinationmodulator
https://t.co/AsNb1VQmg7
@Official_WiR@BloggersHut@BBlogRT Hi! I write about the CF community and the realities of life with a disability. A big change is happening for CF around the world with a brand new treatment that supposedly gives us a new breath. How real is it?
#cysticfibrosis#kaftrio#trikafta
https://t.co/AsNb1VQmg7
@FBlogpreneur Hi there! Just posted a new piece about the brand new medication turning heads in the CF world! It's a big change for one of the rarest childhood illnesses and deserves to be discussed...
#cf#trikafta#kaftrio
https://t.co/AsNb1VQmg7
New level of paranoia achieved: today I disinfected the underneath of my feet because I walked into the entrance hallway barefoot.
I told myself I was crazy when I was doing it, but that didn't stop me from doing it.
@thoughtswithn Hi! I write about life with Cystic Fibrosis and how to still live the life you want. I touch subjects like mental health, body authority and attack the medical industry from every angle I can think of. This is a post that can start to explain my story...
https://t.co/8IPDld5BYw
Hey, #WritingCommunity, anyone up for a #ShamelessSelfpromoSaturday?
🎃Post links to your books, blogs, art, whatever!
🎃Retweet each other (I RT everyone who RT's me)
🎃F4F
Last #writerslift had 40,000 impressions, which is CRAZY!! That's a lot of eyes on your links! 🍷
@KA_Raines My blog is about life with Cystic Fibrosis in all its glamorous messiness! This pandemic & isolation have forced me down memory lane for fun and made me think of my time at university & back to a time where my CF had to co-exist with the outside world...
https://t.co/xivTqQO2ra
@FBlogpreneur Hi! My blog is about living the life you want regardless of the quirks and challenges you face... this post is about mental health and how we shouldn't be scared about feeling frustrated and angry. That is passion, energy and life!!!
https://t.co/m3DgUpxgwT
@theclique_uk Living with a disability a year ago was challenging, but right now living as someone that is vulnerable is on another level of intense. Has it made me a little manic? Yes... #cf
https://t.co/cCfPGHtwrO
@GoldenBloggerz With this new season bringing on a brand new kind of struggles and dangers I wrote a piece that explained why I thought it was important to not feel pressured to be fine or at peace in times of hardships. Expectations are what can bury us further down...
https://t.co/m3DgUpxgwT
@MHBloggerRT@pixee_pea Hi all! My blog is about life and all its madness but with an extra little quirk that is living with CF... Autumn got me reminiscing about school and a younger self and what uni gave me. In this weird time uni will be different but an adventure always!
https://t.co/xivTqQO2ra
Doing breathing therapies whilst watching RuPaul’s Drag Race is like CF missions impossible ... like yes make me laugh and live but no I also need to be serious and not laugh or cough 😂😂😂
@TheBlogLists Here's a cute little piece I wrote about a fable I was told as a worried kid who spent a lot of time in hospital. Short, funny and slightly nostalgic ! Perfect for a friday read!
#tales#hospitallife#cysticfibrosisawareness#childhoodmemories
https://t.co/d6kJ0okwQ6