Christine Barlow

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

Delighted to collaborate with @RCGP to fund online learning course on Neuroendocrine Neoplasms (NENs). In an average practice of 10,000 pts, 5 are likely to be living with and beyond this diagnosis. Learn more here: https://t.co/G75sZFLPXc @boggleddocs @drgandalf52 @Ben_Titford

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

#GP - could it be Neuroendocrine Cancer?
Do you have patients returning with unresolved or increasing symptoms, not responding to conventional treatments & do not fit disease trajectory? Learn more here with our Spotlight on Neuroendocrine Cancer: https://t.co/2HTIRwzUw0 @rcgp

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

Uncommon cancers like Neuroendocrine Cancer can have a significant psychological impact... a hidden struggle. Two thirds of patients experience emotional distress. We raise awareness & support those facing unique challenges https://t.co/Lw7jNLhRiM @macmillancancer @MaggiesCentres

[FA Cup Factfile @FACupFactfile]

#OTD one year ago I underwent life-extending surgery to remove an NET ( Neuro Endocrine Tumour) from my small bowel.

The cancer is also in my liver & is managed by monthly injections & regular scans.

NET is often misdiagnosed & profile needs raising. ⬇️

https://t.co/IAYciXMjC8

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

@HealthPolicyPtp It's straightforward: we urgently need a dedicated NHS Neuroendocrine Cancer pathway @SteveBarclay and it's not acceptable that we do not have one. #nccarepathway

[The Health Policy Partnership @HealthPolicyPtp]

“No one should have to justify illness and battle to get the medical support they need.” – Olivia Williams

People with neuroendocrine cancer face challenges receiving a diagnosis and appropriate care. We worked with @ncukcharity to change this.

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

2/4 Together we can make a difference. If you (or a family member) has been diagnosed with Neuroendocrine Cancer, can you remember the words used to describe it? @OUHospitals @uhbtrust @TheChristieNHS @SheffieldHosp @Leic_hospital @RoyalFreeNHS @LivHospitals @DrLindaDykes

[Christine Barlow @BarlowAvon]

Happy CNS day to all the fabulous nurses at @RoyalFreeNHS @ncukcharity #NationalCancerCNSDay

[Angie Williamson @Angievivienne]

Happy Clinical Nurse Specialist Day to every CNS. I am very proud of being a CNS for nearly 9 years. Cared for and caring for very special people and their families.💙
#nationalcancerscnsday
@NewcastleHosps
@ncukcharity

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

MPs & Councillors - can you help? We're working on something very important & need just one UK #MP to take it forward with us.A significant patient population is not addressed in national cancer plans - 60% diagnosed at Stage IV @MattWestern_ @Helen_Whately @DrSimonHodes DMs open

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

We're facing a #canceremergency and we need dedicated action from the Government. Over 76,000 people signed the #Onecancervoice petition incl members of the Neuroendocrine Cancer community. Petition delivered to UK PM @RishiSunak - #advocacy @NHS_HealthEdEng @10DowningStreet

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

End of first day at #ENETS2023 - so what did we learn? Translational research and the molecular landscape: how are Neuroendocrine Cancers really formed & importantly, what can we do to prevent them? Watch Cathy's update here: @NHS_HealthEdEng @ExeterMed @CR_UK @LancetGastroHep

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

PODCAST: With Dr Tahir Shah Consultant Liver Transplant Physician @uhbtrust - Dr Shah developed specialist services for Neuroendocrine Tumour patients resulting in Birmingham NET Service becoming European Neuroendocrine Tumour Society Centre of Excellence https://t.co/2TqlbNIKrL

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

To move forward .. to identify a small number of pts diagnosed with #Liver metastases from (pancreatic or gut-based) NET primary & who may benefit, in terms of disease-free & overall survival, alongside potential improvements in quality of life https://t.co/cCfutH8orf @LiverTrust

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

"At the time of writing, 17 years on, I still have tears in my eyes as the feelings of gratitude to my liver donor never diminish."
You can read Neuroendocrine Cancer patient, Chrissie's liver transplant story here: https://t.co/p0pkM3B936 @IHPBA @UKINETS @RoyalFreeNHS

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

Last year the government declared a ‘war on cancer’, but the promised #10YearCancerPlan has now been replaced by a Major Conditions Strategy. Today, as #OneCancerVoice, over 60 cancer charities are asking the government to address the needs of people with cancer. @SteveBarclay @

[Nikie Jervis 💙 #NCpathway #LetstalkaboutNET/NECs @njervis67]

Join me and over 60 cancer charities coming together as #OneCancerVoice asking the Prime Minister to address the cancer emergency in England. Sign the petition (hosted by CRUK): https://t.co/XFBTxY59ZM

[Christine Barlow @BarlowAvon]

@ncukcharity @RobbieSavage8 @FrontGastro_BMJ @NHSEngland @NHSScotland @SteveBarclay @NHS_HealthEdEng @RishiSunak @nwcancerforum @NHSDigital @RobbieSavage8 thanks for supporting @ncukcharity Close the Care Cap on #WorldCancerDay

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

#WorldCancerDay Join us today to Close the Care Cap globally and help us gain equity here in the UK for all those affected by Neuroendocrine Cancer. @FrontGastro_BMJ @NHSEngland @NHSScotland
@SteveBarclay @NHS_HealthEdEng @RishiSunak @nwcancerforum @NHSDigital

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

In England, between 1995-2018 the incidence of Neuroendocrine Cancers rose by 371% – in same time period all-cancer incidence (excl non-melanoma skin cell cancer) rose by only 116%. NETs are not rare: https://t.co/hbl9qTPeuY… @NHS_HealthEdEng @rcgp @GPExcellenceGM @DrSelvarajah

[Neuroendocrine Cancer UK #NotJustNECancer @ncukcharity]

'When The Doctor Becomes The Patient':
With thanks to @DrHilaryJones & @PCSGastro for helping raise awareness of #Neuroendocrine Cancer, & huge congrats to Jane Coffey, wife of #GP Paul Coffey for a wonderful talk on her late husband's book @NHS_HealthEdEng @rcgp @PrimaryCareNHS