Chris Robinson

Retired school teacher.
Trustee of Barrett's Oesophagus Campaign and on-line forum moderator.
Chairman of local support group, Barrett's Wessex.
Cycle nut.

[Chris Robinson @Barretts_Uk]

My doctor keeps telling me I have CVD even though the cardiologist insisted I "categorically don't have heart disease!" But he wants an excuse to keep me on statins and get a bonus for doing so. I probably have Roemheld's Syndrome - but he's never heard of that.

[Chris Robinson @Barretts_Uk]

Comparative Efficacy of Reflux Treatments
I had been thinking of writing a paper on this but drew ire from worshippers of RefluxStop who think it would answer all their problems.
The chart summarises my findings drafted here: https://t.co/YU6P0pSOFz

[Chris Robinson @Barretts_Uk]

Down With Acid lite giveaway
I still have some of these. I'd kept a box back to leave in the waiting room of the endoscopy department but they had a fire earlier this year so that's not presently a feasibility. I'll send you a free copy if you ask - but would appreciate postage

[Chris Robinson @Barretts_Uk]

(Image from ChatGTP)

[Chris Robinson @Barretts_Uk]

Looking for comments.
This essay is my simple attempt at explaining the basics of how Barrett's forms and can mutate to cancer. It's a bit crude but trying to put it in simple terms.
https://t.co/rAf1JCEjbQ

[Chris Robinson @Barretts_Uk]

Looking for a new curator.
Down With Acid is a unique encyclopaedia about acid reflux and Barrett's in layman's terms. The project started in 2012 but is now too large and updated too frequently to be printed
New curators required or it may all be lost.
https://t.co/5R8qAnJpwv

[Chris Robinson @Barretts_Uk]

For those who don't know they have it, 0.25% will develop cancer. 99.75% won't.
For those who do know, 0.007% will develop it. 99.993% won't.

[Heartburn Cancer UK @HeartburnCancer]

Today is World Barrett's Oesophagus Day.

Many people with Barrett's Oesophagus don’t know they have it. If you have been experiencing persistent heartburn 🔥 for more than 3 weeks, visit your GP.

Find out how more here 👉https://t.co/UbHz79b4yy

[Heartburn Cancer UK @HeartburnCancer]

It’s #worldbarrettsday today.

We want to encourage anyone who might be concerned about symptoms of heartburn &/or persistent cough to talk to their GP & seek reassurance or treatment.

We’re here for support for anyone who needs us - please do get in touch.

#barrettsoesophagus

[Oesophageal Cancer Fund @OesophagealCF]

Huge thanks to OCF Ambassador and OC survivor Andrew Kelly for sharing his Cancer Journey - highlighting his diagnosis of Barrett's Oesophagus .Today is #WorldBarrett'sDay, know the symptoms and how vital early diagnosis can be.
For more info visit https://t.co/hdVkJs6GzB.

[Chris Robinson @Barretts_Uk]

A drop-in to chat about Barrett's for World Barrett's Day (16 May).
May repeat it sometime.

[Chris Robinson @Barretts_Uk]

Find Barrett's; stop cancer!

[Chris Robinson @Barretts_Uk]

#worldbarrettsday
1. Oesophageal AdenoCarcnoma (OAC) cancer starts as Barrett's.
2. Those who know they have Barrett's won't die of OAC.
Find Barrett's; stop deaths fom OAC.
We need access to more. easier and better testing like cytosponge.
https://t.co/wP9PNrtGo8

[Chris Robinson @Barretts_Uk]

#worldbarrettsday tomorrow.
You won't die of Barrett's but if you don't know you have it you might die of cancer.
95% of people with Barrett's don't know they have it.
We need to educate people about Barrett's Oesophagus.
Find out more at https://t.co/Rx6Bo58xQV

[Chris Robinson @Barretts_Uk]

2 days to #worldbarrettsday
In Southampton I'll be at a drop-in at Haskins Garden Centre restaurant today. Details on this page: https://t.co/HX62FZGCCp

[Chris Robinson @Barretts_Uk]

1 in 20,000 has Motor Neurone Disease (aka ALS) and most people have heard of it.
1 in 20 has Barrett's Oesophagus but most peope have not heard of it.
It can lead to cancer but for those who know they have it, it probably won't happen.
#worldbarrettsday 16 May.

[Chris Robinson @Barretts_Uk]

Understanding Barrett's #6
PPIs also reduce risk of Barrett's mutating to cancer. Various studies, listed in this chapter, https://t.co/dIz2PtDTwG, estimate the reduction to be anywhere between 20 and 71%

[Chris Robinson @Barretts_Uk]

Understanding Barrett’s #5
Acid suppressant medication (especially Proton Pump Inhibitors (PPIs) like omeprazole/Prilosec) do reduce acid but not reflux - just making it less damaging. (https://t.co/LhYRmG0NNf)

[Chris Robinson @Barretts_Uk]

Motor Neurone Disease (MND) aka Amyotrophic Lateral Sclerosis (ALS): most people have heard of it but ony 1 in 20,000 has it.
Barrett's Oesophagus: most people have not heard of it but 1 in 20 has it.
People need to know about Barrett's.
https://t.co/HX62FZGCCp

[Chris Robinson @Barretts_Uk]

Understanding Barrett’s #4
Acid doesn’t cause reflux. (https://t.co/LB4m4hsgCb)

[Chris Robinson @Barretts_Uk]

Understanding Barrett’s #3
Acidity or alkalinity of your diet doesn't change stomach acid. There is NO special diet to follow. (https://t.co/H39hGaUzI0)