So Iโm 44 years old today ๐, not an age I thought Iโd get to! - as little as 4 months ago I was trying to work out how I could cut down my hours at work (again) as I was struggling so much - then I got offered symdeko on compassionate grounds! ๐๐ x @CFAware
Aw I got a lovely birthday card from my ward! ๐ฅฐ (J6/Leeds) A big THANK YOU to everyone - thatโs so sweet of you all!! ๐ฅฐ - and thank you for everything you do ๐ค x @CFLeeds@CFAware@cftrust
"The damage that you're doing to families like myself is terrible".
A mother of a child who has cystic fibrosis tells Health Secretary Steve Barclay that it's "not fair" to blame NHS issues on COVID, adding that there were challenges before the pandemic.
https://t.co/KnmmM0fyEn
This afternoon, our Public Affairs Officer @gtpaget met with @RachaelMaskell MP, in her role as a member of @CommonsHealth, alongside the Chair of the Prescription Charges Coalition, Laura, and Aaron (@DoctorCF) who has CF to discuss our campaign... (1/2)