An overview of our preliminary findings focusing upon the psychological implications & health risks of #CF pre and post CFTR modulator therapy as presented at #ECFS2021.
To watch our video click the link below:
https://t.co/eSHNOrChLP
Cfers please let us know your feedback.
🧠 If we understand more about what it is like to live with infertility and to undergo fertility treatments we can embed more effective support for psychological wellbeing / mental health.
📧 For further information, or to participate please contact me via email or DM.
💉 Would you like to share your views on the impact infertility/treatments for infertility have had upon your wellbeing?
👩 You can participate in our interview if you are a woman in a heterosexual relationship currently undergoing (or previously undergone) fertility treatment
(3/3)
📧 For further information please contact me via email or DM; feel free to share this post with others who may be interested in participating!
⁉️To participate scan the QR code or visit: https://t.co/qdZ3UbNk4u
(2/3) You can participate in our online questionnaire if you are:
🫁 An adult with #CysticFibrosis (#CF)
🧑🧑🧒 A parent/caregiver of an individual with CF
👫 A spouse of an individual with CF
🩺 A HCP working with individuals with CF
Findings from my second research chapter have been published in Sexuality Research and Social Policy @SRSPJournal 🏳️🌈
#lgbtq#eating#mindfulness https://t.co/fgVaXsBHau
Final push for Gastroparesis Participants for 2nd PhD study! Need 35 more. Must be 18+, have gastroparesis, not NPO/Nil by Mouth (able to eat, even if just occasionally), can read & write in English. Dm questions. Can be from anywhere.
Link: https://t.co/V3o3KOXRXP
Thank you!
It was a pleasure working on this research project and listening to the physical activity experiences of those living with chronic respiratory disease during the pandemic
Give it a read here https://t.co/EO0CPq40wx
We're about halfway for participants on this study! If you can spare 10/15 minutes maximum and fill this in, I would be incredibly grateful!
Link: https://t.co/V3o3KOXRXP
Need to be: 18+, diagnosed with gastroparesis, and eat some or all of nutrition orally 😊
Professor Helen Egan examines eating bhaviours in adults with CF and importance of mindfulness-based eating practices which are person- centred - HCP’s need to find new ways to support our pwCF #ECFS2023
💚GASTROPARESIS PARTICIPANTS NEEDED💚
2nd PhD study has been approved! If you have gastroparesis, are 18+, and have some/all of your nutrition orally, please take part!
Study link: https://t.co/V3o3KOXRXP
ID below
#Gastroparesis#EhlersDanlosSyndrome#POTS#chronicillness
✨PARTICIPANTS NEEDED✨
If you have gastroparesis, are over 18, and have some (or all) of your nutrition orally, please take part!
Comment or dm with any questions!
Link is: https://t.co/szZdRg2xbG
#Gastroparesis#tubefed#chronicillness#Disability#EDS
Very excited to share the first publication from my PhD! With thanks to my incredible supervisors for being so supportive 🙌🏻
#mindfullness#LGBTQIA 🏳️🌈 #bodyimage#eating
https://t.co/sv30MiuxWp
Happy #FeedingTubeAwarenessWeek! Spending the next 2.5-3yrs on my PhD interviewing and working alongside people with feeding tubes! I have my own recent temporary experience with NGs but hoping to share posts from others who live with feeding tubes and/or gastroparesis!
Recruitment is still open.
If you are an individual with #CysticFibrosis & have experienced a change in mental health / wellbeing post-modulator therapy please consider participating.
📧 For further information please contact me via email or DM.
#CF#Kaftrio@CFAware
Are you an individual with #CysticFibrosis who has experienced changes in mental health and well-being post-modulator therapy? If so please consider participating in our latest research study.
@CFAware
📧 For further info contact me via DM or email ([email protected])