Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️

Too stubborn to stop fighting for a better future for myself & the world 🌻💛

Trying to find me again despite #SevereME, #gastroparesis, #MCAD, #POTS etc 🐝

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

Today (well, yesterday now) is #MEAwarenessDay. I've been one of the #MillionsMissing since age 16. I turned 23 last week.

There are so many things I could say about life with #SevereME, so many alarming statistics & horrifying, heartbreaking stories. (1/8)

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

I'm never making it out alive

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

Thank you so much for taking the time to read this, if you did – I know it's a lot yet still explains so little. I'm honestly terrified to be posting this at all but I think I have to. I want to live so so bad. More than ever.

Sending my love and strength to all of you ❤️ 12/12

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

I seriously hate doing this so much (especially when everyone's struggling), but if anyone could please please signal boost this, I'd be so immeasurably grateful 💙
https://t.co/4gCnOvbEsB

[CW for mention of weight] 1/12

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

...via my PayPal, here: https://t.co/VAFaJaOpg3 (name shows as Jacklyn because PayPal forces me to use my deadname 🥲). If you can't, please consider sharing to signal boost, every dollar & every share really could be lifesaving and is more appreciated than I can even say. 11/

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

@FrickerAlice This has been happening to me almost constantly (but especially during PENE) ever since my ME became severe, ~6 years ago. I call it my "waking apnea". Every breath requires deliberate effort or I just stop breathing. It can be very scary. Sending love & strength to you both ❤️

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

Getting sicker every day, can also go into anaphylaxis at any time due to constant trigger exposure from household. Weigh less than 75 pounds. Dying. No income. They're planning on committing me to mental facility against my will (which would kill me). Pls help. Thank you ❤️ 3/3

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

So sorry I haven't been on to check my notifications, I'll follow everyone back when I can ❤️

Important question: anyone know of any DV shelters that offer private/individual accommodations (and help people from different counties/states)? 1/3

#DomesticAbuse #DomesticViolence

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

Staying here is very literally killing me due to multiple progressive diseases (#SevereME, severe #MastCellDisease, severe #gastroparesis etc), my life is in serious danger in several ways & I'm really scared. I don't want to die. 2/3

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

For now, I'll fight when I can, and rest when I can't, and I'll be grateful for the moments when I'm well enough to dream of a better future. And if any of my fellow #pwME are seeing this, please know: I'll keep dreaming of that better future for all of you too 💙 (8/8)

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

Today (well, yesterday now) is #MEAwarenessDay. I've been one of the #MillionsMissing since age 16. I turned 23 last week.

There are so many things I could say about life with #SevereME, so many alarming statistics & horrifying, heartbreaking stories. (1/8)

[Thisbe (she/they)🧑‍🦽🦓🏳️‍🌈🎶✒️ @BeesBattle]

We must fight for adequate federal funding to support research into this disease, and practical support for those living with it (including adequate treatment). Whoever you are, please use your voice. We need it. You just might too one day, and by then, it could be too late (7/8)