Bleeding and Clotting Disorders Institute

The Bleeding and Clotting Disorders Institute provides integrated, family-oriented care, treatment and education for persons with blood disorders.

[J Roberts @JonRob08]

Happy to share our study of recombinant VWF real-world treatment patterns and outcomes at 11 centers in the U.S. We demonstrate that routine rVWF prophylaxis reduced bleed rate and healthcare resource utilization compared to prior VWD treatments. #VWD #VWF https://t.co/vGHiJVMBQg

[J Roberts @JonRob08]

Proud to work with esteemed colleagues to improve future research priorities. The patient voice, through lived experience experts, must be incorporated into cutting-edge research programs from start to finish. https://t.co/gMQUL70k0C

[Bleeding and Clotting Disorders Institute @BloodExpertsIL]

We are excited to showcase the BCDI 2024 Annual Report! This is our longest newsletter yet, with 24 pages devoted strictly to everything surrounding BCDI and our incredible community in 2024.

Our 2024 Annual Report can be read in full right here: https://t.co/EFKe3ps9H9

[Bleeding and Clotting Disorders Institute @BloodExpertsIL]

From all of us at BCDI- We wish you a Merry Christmas and Happy Holidays!!

[J Roberts @JonRob08]

ATIII deficiency can significantly increase thrombosis risk, particularly VTE. Recurrent thrombosis in 58.6% of patients (44.8%) despite AC. 35% of patients received ATIII concentrate and 84% of these for prophylaxis. https://t.co/21g0f5k0a7

[J Roberts @JonRob08]

Individuals with multiple bleeding disorders can be challenging to manage. We describe HemA+VWD managed successfully with Emi when F8 prophylaxis alone was insufficient. Emi may treat some #VWD @BloodExpertsIL @kanstea #hemophilia https://t.co/cGO0nXl16x

[J Roberts @JonRob08]

Thankful to have the opportunity to honor Bob with many colleagues from around the world. He is a living legend, touched countless lives, and mentored many. I’m thankful to be included among those ranks. We stand on your shoulders! Congrats, Bob!

[Bleeding and Clotting Disorders Institute @BloodExpertsIL]

Today is #WorldThrombosisDay! 1 in 4 people worldwide die of conditions caused by thrombosis, otherwise known as blood clots. BCDI is raising awareness about blood clot risk factors, signs and symptoms. Learn more by visiting https://t.co/L4WsJuofoy. #TheBloodExperts

[Bleeding and Clotting Disorders Institute @BloodExpertsIL]

At @nbd_foundation's #BDC2024, Dr. Tarantino earned the distinguished honor of NBDF’s Lifetime Achievement award! Please join us in congratulating Dr. T for this well-deserved award!

To learn more about the NBDF Lifetime Achievement Award, visit: https://t.co/AZ69jX3ff1

[J Roberts @JonRob08]

Patient-reported outcomes are essential to optimize care in #sicklecelldisease Happy to share our pilot study. Much more work is needed! ⁦@BloodExpertsIL⁩ https://t.co/IGFRbfUXbn

[Bleeding and Clotting Disorders Institute @BloodExpertsIL]

✨BCDI Family Day is in full swing!! ✨
Our patients and their families are joining us for a day full of carnival fun, education from our expert staff, and delicious food from local vendors!

[J Roberts @JonRob08]

Happy to share! Our article received enough citations to be a #TopCitedArticle @haemophilia_jnl Great working with a dedicated team. https://t.co/fA7A30e1TE @BloodExpertsIL

[Bleeding and Clotting Disorders Institute @BloodExpertsIL]

The inaugural BCDI Golf Outing is coming up on August 29 at Mt. Hawley Country Club! You won't want to miss this event, which is a four-person scramble format and will tee-off at 10 a.m.

For more information & to register, please visit https://t.co/dj5gw7i7O6

[Rishabh Singh, MD 🩸 @docrishabhsingh]

Insightful master class at @WashUHeme grand rounds by Dr. Tarantino, leading expert in #ITP. Covered the history, treatment modalities, and evidence behind various therapeutics from steroids, splenectomy, IVIg, and rituximab to TPO-RAs. Highlight: ‘How I treat’ @UICOMPeoria

[J Roberts @JonRob08]

@BloodExpertsIL Founder and ITP expert giving @WashUHeme Grand Rounds tomorrow! Mike is an international thought leader in ITP, and my longtime mentor, colleague, and friend. Join if you can! Would be great to have virtual option @WashUHeme

[J Roberts @JonRob08]

Congrats @mariaespanolm for such a thorough and easy-to-understand review of decades of therapeutic advancements in #hemophilia. 👏🏽👏🏽👏🏽🩸🧐The Evolution of Hemophilia Therapeutics: An Illustrated Review - Research and Practice in Thrombosis and Haemostasis https://t.co/gmNWQuMmU0

[Maria Español @mariaespanolm]

Happy to share @JonRob08 @BloodExpertsIL

The Evolution of Hemophilia Therapeutics: An Illustrated Review https://t.co/UTBfqW6DFA

[J Roberts @JonRob08]

Congrats to Dr. Jessica Mistretta @mariaespanolm and colleagues @BloodExpertsIL for our recent report explaining unique challenges with using Altuviiio in a 19-month-old with severe #hemophilia A.

https://t.co/xRK2KSHcVY

[Bleeding and Clotting Disorders Institute @BloodExpertsIL]

The May 2024 edition of The BCDI Beacon newsletter is here! To read The BCDI Beacon and sign up to have each edition sent directly to your email, please visit: https://t.co/EFKe3ps9H9

[Bleeding and Clotting Disorders Institute @BloodExpertsIL]

Today is World Hemophilia Day! Devoted each year on April 17 to those who have hemophilia- a rare condition in which blood cannot clot properly because it lacks adequate blood-clotting proteins.

Help spread the world about #WHD2024 and learn more at https://t.co/H6qIaecZFs