Proven excellence in #orphandrug data analytics, forecasting, and market access strategy with a special focus in #RareDiseases *retweets/likes ≠ endorsements*
Have you been wondering how #COVID19 will affect #orphandrug development? Check out our latest blog post about the pandemic’s impact on the #raredisease sector https://t.co/4jFzJRMhi4
Great to see everyone on screen at day 1 of Inborn Errors of Metabolism today! Looking forward to more discussion tomorrow #RareDiseases https://t.co/S40W04UFnU
The #NORDSummit will bring #raredisease leaders & stakeholders together to provide new approaches & fresh perspectives on #publicpolicy, clinical trials, access to #diagnostic testing & pharmaceutical innovation. Register or apply for a scholarship: https://t.co/xeG7IVFtKh
With the #DISORDER: The #RareDisease Film Festival postponed by the pandemic, the Rare Outreach Coalition decided to start its own streaming channel and bring their content right into your home! Read more: https://t.co/t3WtrUnD5c
Thanks to these four families and @nytimes for profiling what life with #raredisease is really like - #orphandrugs and treatments are so important https://t.co/0GsQn0WHl9
LAST CALL to register for #RareAcrossAmerica
Check out this article from @healourskin where Shannon von Felden, #RDLA program director, shares everything you need to know about this unique event.
https://t.co/GAbYRHGRaU…/docs/ippf-100-spring-20-issuu/26
Join #NORD, @CPathInstitute, @US_FDA and @TakedaPharma tomorrow, June 24 at 2:00 PM ET for “Shortening the Timeline for Developing New Treatments – How the Rare Disease Cures Accelerator–Data and Analytics Platform Can Help.” Register: https://t.co/LFndK4OI2J #RDCADAP#webinar
The National Organization for Rare Disorders (NORD) is pleased to announce new funding opportunities through the Jayne Holtzer #RareDisease#Research Grants Program. Submission of proposals are due by August 25.
Read more: https://t.co/YVOZuH4PZ9
Today until July 31, the @US_FDA is seeking comments and feedback from patients, health professionals, and others in the #raredisease community to establish a clinical trials network https://t.co/4gOvBZ2ZlS