Bobby Kipp

Ethics, oboe, skiing, tennis, Peaks Island Maine

[Bobby Kipp @BobbyKipp3]

As your constituent & someone impacted by #ALS, I urge @SenMarkey to support new and increased federal investments in #ALSresearch that will lead to more clinical trials to help find effective treatments, prevent new cases and find a cure for ALS. #ALSAdvocacy

[Bobby Kipp @BobbyKipp3]

As your constituent & someone impacted by #ALS, I urge @senwarren to support new and increased federal investments in #ALSresearch that will lead to more clinical trials to help find effective treatments, prevent new cases and find a cure for ALS. #ALSAdvocacy

[Bobby Kipp @BobbyKipp3]

Dear
@AmylyxPharma
and
@BrainstormCell
,

On behalf of the ALS patient community, submit your NDAs to FDA now. It’s way past time to give patients a chance and to force FDA to act.

[Bobby Kipp @BobbyKipp3]

@mpabull @SenMarkey @SenWarren Yes, WHY!!!!!!????

[Becky Mourey @becky_mourey]

Dear @US_FDA @FDACDERDirector @DrWoodcockFDA , 6.5 month survival and functional benefit is robust. Data from Centaur IS enough for provisional approval of AMX0035. I can handle the risk of diarrhea. ALS is the poster disease for unmet need.
Sincerely,
Becky living with ALS

[Bobby Kipp @BobbyKipp3]

@becky_mourey @US_FDA @FDACDERDirector @DrWoodcockFDA Well said!

[Bobby Kipp @BobbyKipp3]

I challenge ⁦@mhwelles⁩ , @zoekipp, ⁦⁦@Myracollard⁩ to #FlexOnALS. Post a photo with “FlexOnALS” written on your bicep (or selected other body part) and tag 3 or more friends to post and/or donate! Flex on, and spread awareness!

Donate:
https://t.co/r0JlTGMui6

[Bobby Kipp @BobbyKipp3]

https://t.co/RXD1aojVXx