I’ve been on antibiotics for over 2 years now to treat #LymeDisease that has had me disabled & chronically ill for the last 15+ years & mostly bedbound for the last 5.
I have severe migraines & brain fog so my capacity is limited.
I will make mistakes, please give me grace
i'm in love with this quote:
"if you're persistent, you'll get it. if you're consistent, you'll keep it. and if you're grateful, you'll attract more of it."
Major cheat code in life: One priority per day. Not three. Not five. One. Pick the single thing that, if completed, makes the day a win regardless of what else happens.
Protect two hours for it. Most people go entire weeks without finishing anything that actually matters because everything feels equally urgent.
The fact that different disabled people's access needs sometimes conflict with one another IS an important conversation that inherently requires humanity, compassion, and grace.
It is NOT something that you can use as a 'gotcha' to justify ableism against some disabled people.
'the fear of abandonment is fear of annihilation because you are identified with the other' really hits harder than almost anything I've ever heard spoken on this topic. it speaks to a truth that is hard to feel in a way that translates into words, I think
was having suspected hormone issues for over 10 years. Went to a fertility clinic & they did all the testing & diagnosed me w/ hypothyroidism & gave me a prescription for levothyroxine. QoL suddenly shot through the roof. Problem solved. All of it was covered by insurance.
The example that stands out to me are the Brontë sisters, who all died young of easily preventable disease. A famous middle-class family just died off, and it wasn't regarded then as anything at all unusual. Likewise feels like every 2nd Dostoevsky character has tuberculosis.
I tried to do research on the consequences of pornography bans and was surprised to learn this was true and so - at least to my awareness/knowledge - undiscussed.
the only way to avoid this is work from home jobs. thats why we keep advocating for remote work. That way disabled ppl can set up a workspace that doesnt trigger meltdowns as often and if they happen, theyre at home
Me expressing love: “Hey you should make plans to hang out with your other friends, too!”
(Because it is not healthy to be emotionally dependent on just one friend, whether wholly or just mostly; I don’t want that much power, and I shouldn’t have it even if I did want it)
According to psychology, the urge to immediately fix a partner’s or friend’s distress instead of just sitting with them in it isn't empathy; it is your own low frustration tolerance. When someone you love is hurting, and you instantly jump into problem-solving mode, offering unsolicited advice or trying to find a silver lining, you are often trying to soothe your own secondary anxiety. You aren't rescuing them from their pain; you are rescuing yourself from the discomfort of witnessing a vulnerability you don't know how to hold.
One of the most heartbreaking things it’s possible to experience is going from “Is it because I’m _?” just being an idle fear, to proven beyond a shadow of a doubt by day-in, day-out, real-world evidence that yes: You NEVER could have been good enough for them as what you were.