@MichiganHHS@migovernment value to the actual patient. I would encourage you to think about how families work and take care of these children without reliable help, and help that is compensated for the demands of the patient/s.
@MichiganHHS@migovernment across the state who provide PDN & does not provide the ability for that caregiver to get paid if there is a long term hospitalization (so they may need to find a new case and/or employers). Home health agencies also impact the wages of the care givers without provide much
@MichiganHHS@migovernment Other states allow parents and/guardians to be a compensated primary caregiver for their young child through certain chronic illnesses. This tax credit is nice, but finding reliable help outside of the family is very difficult. Today’s model under compensates the caregivers
Today I realized I’m at the stage in my life where my wife sounds like my mother did during my childhood about an hour before guests arrive in our home. #clean#adulting#dadlife#legacy#52cardpickup 🗣️
Zachary receives his care from @MottChildren. His appreciation for his hospital family reminds us how hard Children’s hospitals work to ensure their patients have access to quality care and reinforces the need for accessible, affordable healthcare in this country.
It was an honor to meet with you @RepDebDingell ! Taking time to meet with us during a very busy legislative day made us feel important.
Thanks for fighting for our providers, our families & patients like Zach! We appreciate you! #FAD2023#fearless4kids#advocacy@MottChildren
Zachary Buckley is a young Michigander, @Lions fan, and superhero lover. He battles Cerebral Palsy every day, but, in true superhero fashion, it is no match for his resiliency & strength.
Love you bud! Happy to share your story with our legislators and hospital friends. We’re looking forward to meeting all our other kiddos and family in DC in a couple weeks! #advocacy#specialneedsfamily
Zachary, one of our #Fearless4Kids#FAD2023 Champions, was diagnosed with various medical conditions and receives vital care at @MottChildren. Zachary and his family (@bpbuckley12) will advocate for other kids like him this summer.
Read more: https://t.co/FRr8fS5vEw
My five year old is destined for great things. She played the “copying me” game for 90 minutes today without wavering. #dedication#daddaughtertime#kids