Brett Kopelan

Just trying to cure my daughter's rare genetic disease, Epidermolysis Bullosa, as the Executive Director of debra of America.

[Krystal Biotech @KrystalBiotech]

Congratulations to @debraOfAmerica on a successful event last weekend to conclude #EBAwarenessWeek. What a special way to celebrate and honor the #EB Community.

#EBAwareness #LivingwithDEB #raredisease

[CGTLive® @CGT_Live]

ICYMI: @BrettKope spoke about advanced therapies on the horizion including @AbeonaBio’s EB-101 and @CastleCreekBio’s dabocemagene autoficel.

#EBAwarenessWeek2023 #EBAwarenessWeek #genetherapy #celltherapy

Watch now:

https://t.co/0aMwejJiZI

[Brett Kopelan @BrettKope]

More than 1 therapy is needed to holistically test those with deb.

[CGTLive® @CGT_Live]

@BrettKope spoke about advanced therapies on the horizion including @AbeonaBio’s EB-101 and @CastleCreekBio’s dabocemagene autoficel.

#EBAwarenessWeek2023 #EBAwarenessWeek #genetherapy #celltherapy

Watch now:

https://t.co/0aMwejJQPg

[Krystal Biotech @KrystalBiotech]

It’s #EBAwarenessWeek - spread awareness about EB a rare skin disease that causes extremely fragile skin that blisters and tears with any friction.

Learn more and show support of #EBAwarenessWeek from Oct 25-31: https://t.co/OMBUMtWQeP

[CGTLive® @CGT_Live]

@BrettKope noted that the approval of @KrystalBiotech's B-VEC #genetherapy represents a major milestone for the #EpidermolysisBullosa treatment landscape.

#EBAwarenessWeek2023 #EBAwarenessWeek

Watch:

https://t.co/PUbZoji26i

[Brett Kopelan @BrettKope]

This is an incredibly important piece of news 4 investors of cell & gene therapeutics. CGTx, particularly in rare disease, have a much greater chance of approval than other drugs. Durable treatments & curative therapies are getting approved at much higher rates.

[Alliance for Regenerative Medicine (ARM) @alliancerm]

New analysis from @TuftsMedicalCtr NEWDIGS shared last week at #CGMesa23 shows that cell and gene therapies are substantially outperforming other, less targeted treatments in the clinic.

@FierceBiotech covers what the new data means for the sector.
https://t.co/ObPZUGsvk5

[Brett Kopelan @BrettKope]

@jamesv_fdalwyr Wow congrats. She will undoubtedly make immense contributions to HPM and your clients.

[Brett Kopelan @BrettKope]

This is a very important milestone for the EB community.

debra of America Launches Registry for Individuals and Families Diagnosed with "The Worst Disease You've Never Hea... https://t.co/DThzKpqmnh

[Brett Kopelan @BrettKope]

Rafi, aka Lily, is in People Magazine. Thx @people for writing about her.

https://t.co/zwTt9vitt9

[Krystal Biotech @KrystalBiotech]

@debraOfAmerica is hosting another great EB Community Regional Meetup for individuals with EB and their families. Each event is an educational and social gathering to stay informed and connect with others in the EB community.

To learn more, please visit: https://t.co/0mIoDxCk46

[Brett Kopelan @BrettKope]

@AaronBlank Go electric. While i love my Tesla there are now other viable options. Rivian SUV is nice & next year, Jeep is coming out w/ what looks like a nice one. In 6 months w/ the Tesla i’ve saved a net $650 by charging instead of paying for gas for my previous car, an Expedition.

[Brett Kopelan @BrettKope]

Today, in partnership with The Assistance Fund, debra launched a patient assistance program to defray the costs of out-of-pocket medica expenses associated with eb. Expenses like co-pays, and insurance premiums are eligible for help...
https://t.co/sEcWAgLF3U

[Brett Kopelan @BrettKope]

One of her videos now has more than 2 million views

[Brett Kopelan @BrettKope]

Can we get Rafi’s video 250,000 views and 2,000 comments? She’s getting up there already, 80,000 views more than 600 comments since this morning. https://t.co/CCTofpsi7c

[Brett Kopelan @BrettKope]

@KrystalBiotech @SocietyPedsDerm See you there. I am a speaker.

[debra of America @debraOfAmerica]

Thank you @CBSNews for highlighting the exciting FDA approval of VYJUVEK @KrystalBiotech & its impact on quality of life for individuals with DEB like 15 y/o Rafi, daughter to debra’s Executive Director Brett Kopelan. Watch below. #genetherapy
https://t.co/U0cp1by4DS

[Brett Kopelan @BrettKope]

Here is Rafi and ne on CBS this evening talking about @KrystalBiotech newly approved gene therapy for EB.
https://t.co/NZC93PlMcn

[Brett Kopelan @BrettKope]

Amazing new today. Krystal Bio's topically applied gene therapy was approved by the FDA! This is the first drug approved to treat EB and it has proven to be safe and effective. It's going to change Rafi's life.
https://t.co/uvqr8eLBPp

[Brett Kopelan @BrettKope]

Fun at EBMRF’s event last night. Rafi loved meeting Kaley Cuoco and Courtney Cox.

[Charlene Son Rigby @charleneson]

I was honored this week to host the #RDDS keynote panel with these amazing advocates @LeahEDSCN2A @BrettKope & Simon Frost. each shared their stories & lessons learned as they chart the path to urgently needed therapies for their children's #RareDiseases. #nextgenerationadvocates