Bristol Adult CF

The Twitter feed of Bristol Adult Cystic Fibrosis Centre - dedicated to providing high quality care for adult CF patients in Bristol and the Severn region

[Bristol Adult CF @BristolAdultCF]

https://t.co/i9YJnIbgZr Awesome #kaftrio #cysticfibrosis

[Bristol Adult CF @BristolAdultCF]

You beat me to it Alex but yes that's brilliant!
https://t.co/cv5AqvZREC

[Alex Horsley @AlexRHorsley]

**BREAKING NEWS on #TRIKAFTA / #KAFTRIO**
Looks like the news we have been waiting for. Wow! I did not expect that to happen quite so quickly, but am absolutely thrilled that it has!!
#future4cf

[Bristol Adult CF @BristolAdultCF]

Happy #WearYellowDay from @BristolAdultCF! #CFyelfie #CFweek #CFawareness @cftrust @uhbwNHS

[Charlotte Hardaker @CharlieHardaker]

Very exciting!! Really good feedback when we trialled it! @BristolAdultCF @BreasMedical @NippyVentilator #respiratory #respPT

[CFHealthHub @cfhealthhub]

It’s #CFWeek & it’s great to read all the inspiring stories on the theme of #BalancingCF. #CFHealthHub aims to support balance - empowering people with CF to build habits for treatment-taking in order to reduce the burden of self-care. Hopefully so it feels a bit less like this..

[University Hospitals Bristol and Weston NHS FT @uhbwNHS]

Today is #InternationalClinicalTrialsDay which gives us an opportunity to recognise how our amazing staff from the research and clinical teams across UHBW have come together to recruit patients into the vitally important #COVID19 clinical trials. (1/2)

[Wessex Adult CF Service @Wessex_adult_CF]

Good morning
Mylan are reporting a supply issue with Creon 25,000 which should be resolved by end of May 2020. Please make sure you put your prescriptions in with plenty of time. If you are having issues obtaining Creon please contact your CF dietitans for advice. #creon @cftrust

[CFHealthHub @cfhealthhub]

We are delighted that over 1000 adults with CF (and counting!) are now on #CFHealthHub. Huge well done to all the CF Centres across the UK for achieving this milestone! 💪👏 We're so pleased that CF teams can continue to support people with CF who are shielding at home. #ICTD2020

[Alex Horsley @AlexRHorsley]

Times are hard, but this seems extreme!

[University Hospitals Bristol and Weston NHS FT @uhbwNHS]

Weston General Hospital is temporarily stopping accepting new patients, including A&E, as of 8am today (25 May). Arrangements are in place for new patients to have continued access to treatment & care in other appropriate healthcare settings if needed. https://t.co/PRpmwOMqzw

[Charlotte Hardaker @CharlieHardaker]

Getting ready to deliver the first of our new clearways! @BristolAdultCF @BristolAdultCF @uhbwNHS @amyphysiosmith #cf #cysticfibrosis #respPT

[UHB CF Physios @CF_physios]

The CF Medical Association have released this statement. Please read it 😊 The shielding that you have been working so hard to do is working. We are here for you if you need anything; just a phone call away

[Charlotte Hardaker @CharlieHardaker]

Now is the time, if you’ve not done it already! Get 2 months free! @BristolAdultCF @uhbwNHS #cf #cysticfibrosis #shielding #MondayMotivaton #lockdown

[Wessex Adult CF Service @Wessex_adult_CF]

PWCF - In lock down? Make the most of it: @Beam_CF is a fantastic personalised exercise platform. Better still, it is free for 2 months as long as you register THIS WEEK, using the code BEAM-STAY-WELL

[Cystic Fibrosis Trust @cftrust]

Calls to our Helpline have doubled and demand for welfare support has enormously increased. We want to help every person with CF who needs us right now, but we are facing tough choices. Please help us by donating to our Emergency Appeal: https://t.co/I5VpZdg53E

[University Hospitals Bristol and Weston NHS FT @uhbwNHS]

We’re all in this together! 👏👏👏#Clapforkeyworkers #ClapForNHS #TeamUHBW #NHSHeroes @ZacEfron @Disney @VanessaHudgens @ashleytisdale @BNSSG_CCG @NHSEngland @NHSuk @BBCOne

[Charlotte Hardaker @CharlieHardaker]

These guys are amazing! Always smiling, even through challenging times. These are my NHS hero’s!!! #wardA900 #NHSheroes @SarahBeech6 @uhbwNHS

[Anne💙Bruton @AnnieBruton]

If you need help with breathing and coughing, please don’t take advice from random videos on YouTube or tweeted by well-meaning but misinformed celebrities. Ask a #respiratory #physiotherapist. We know about this stuff.

[Charlotte Hardaker @CharlieHardaker]

@emaroids1 @BristolAdultCF @amyphysiosmith @jillnrobinson

[Ema Swingwood (She/her) @emaroids1]

Great to see this document in print- an amazing collaboration. Thank you to all involved.
https://t.co/C6Vboc5xxm
@TheACPRC