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CCHS Network
@CCHSNetwork
A 501(c)3 organization dedicated to raising awareness, funds, and family support for congenital central hypoventilation syndrome (CCHS), a rare orphan disease.
www.cchsnetwork.org
Joined September 2011
78 Following
434 Followers
2K Posts
Pinned Tweet
The 9th Annual International CCHS Day is exactly one month away. Let your light shine for our rare disease on September 23rd and help guarantee a brighter future for our community! For full details, click on the link in bio or go to https://t.co/zbvyXUdFcK.
Just posted a photo https://t.co/yPpmi4OpLR
Tomorrow is CCHS Day! Please help us deliver a unified message of advocacy by posting the following image on your social media accounts. #cchsnetwork #castalightoncchs #cchsday2022 https://t.co/xuWnUcZPdv
Just in time for CCHS Day 2022, our redesigned website is now LIVE! #cchsnetwork #castalightoncchs #cchsday2022
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Just posted a photo https://t.co/bi0doeUO6m
Happy Halloween from our little tricksters!!! #cchsnetwork #castalightoncchs https://t.co/VAWi6pz0rC
Happy Halloween from our little tricksters!!! #cchsnetwork #castalightoncchs https://t.co/UjZmnZVTLi
Just posted a photo https://t.co/e7PE33lOgf
Two weeks from today…CCHS Day 2022!!! #cchsnetwork #castalightoncchs #cchsday2022 https://t.co/OmxlaMj7IQ
Bonfire Glow-In-The-Dark Shirts, Sweatshirts and Onesies: https://t.co/u68R2NhF0Z
CCHS Firefly Pin: https://t.co/eF7lSb0QI6
#cchsnetwork #cchsday2022 #castalightoncchs
We’re casting a light on our happy little camper, Abby! #cchsnetwork #castalightoncchs #cchsday2022 https://t.co/wdvzWRD0kV
The CCHS Network is excited to launch our new logo and brand. Go to https://t.co/nnpFfokrnj for more information and to learn about CCHS Day 2022 happening on November 12th (including the sale of shirts and pins). #cchsnetwork #castalightoncchs #cchsday2022
Just posted a photo https://t.co/ISEYT1AXmP
TWITTER
Happy CCHS Day! Watch our call to action video below, and post your own wave videos, or tag a friend for the #jointhewaveforcchs challenge. Go to https://t.co/9M6l94oue1 to donate and learn more about this heartbreaking disease
Just posted a photo https://t.co/5RGY2PIrP1
Just posted a photo https://t.co/VIm09WayGv
Just posted a photo https://t.co/vqOhA7IAEs
Just posted a photo https://t.co/HP56OZ2WLU
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