Coma Research

Prolonged Disorders of Consciousness (Vegetative/MCS) patients. Research Resource for Families:

[PMLD Link @PMLDlink]

As a leading voice, information sharing and networking charity focused purely on people with profound and multiple learning disabilities we welcome your feedback. Please take two minutes now or anytime to offer us your valued feedback!

[Coma Research @CDOCuk]

“I miss him every day, but Michael is here”.
Schumacher’s family don’t discuss his condition publicly, but this comment from his wife will resonates powerfully for many families of loved ones with catastrophic brain injuries.
https://t.co/eUkMeYzMRk

[Barbara Rich @BarbaraRich_law]

I was on @BBCr4today this morning at. 7:41 talking about lasting powers of attorney and deprivation of liberty safeguards for adults in a care setting https://t.co/LiE6OQbxCY

[Coma Research @CDOCuk]

Townsend v Epsom judgment.

Summary of expert workshop addressing implications for legal proceedings, healthcare organisations & clinical practice, families, patients & professional guidelines.

https://t.co/vbdgfoy4VS

[Neil Allen @NeilAllen39]

The week in mental health & capacity law: how AGNI is playing out in court - objections front and centre; a discharge saga meets an MHA assessment; and two Ombudsman decisions on s.117 charging and nearest relative requests. All explained in plain English: https://t.co/PnjpEPMXmL

[Jenny Kitzinger @JennyKitzinger]

My blog @OpenJusticeCoP explores what ‘Liberty’ meant to my sister Polly;
how #DoLS worked & what #AGNI might mean for her future (objection & ‘valid consent’).
First time I’ve written much re. what’s happened 17 yrs since her crash.

Comments v. welcome
https://t.co/jPEk28gRfh

[Celia Kitzinger @KitzingerCelia]

Very enjoyable convo about advance care planning with Nicholas Mostyn, Helena Kennedy & Charlie Falconer

Turns out we all 4 have LPAs in place, but only 2 of us have Advance Decisions to Refuse Treatment

And what different views on what we'd want!

https://t.co/BF0iQYivsU

[Coma Research @CDOCuk]

Deprivation liberty safeguards for PDoC patients, & those who emerge with profound impairments
How has DoLS worked?
What’ll happen post the Supreme Court judgment in #AGNI?
A personal reflection to inform practice - #DoLS

[Jenny Kitzinger @JennyKitzinger]

My blog @OpenJusticeCoP explores what ‘Liberty’ meant to my sister Polly;
how #DoLS worked & what #AGNI might mean for her future (objection & ‘valid consent’).
First time I’ve written much re. what’s happened 17 yrs since her crash.

Comments v. welcome
https://t.co/jPEk28gRfh

[Coma Research @CDOCuk]

Interdisciplinary rehabilitation in prolonged disorders of consciousness
https://t.co/hLEDrmZhMt

[Alex Ruck Keene @Capacitylaw]

Updated AGNI resources page (and over and out for now): https://t.co/UDAbkN3D9m

[Alex Ruck Keene @Capacitylaw]

DHSC initial guidance on deprivation of liberty after AGNI: https://t.co/EmXKsrxyl3

[Open Justice Court of Protection Project @OpenJusticeCoP]

Iatrogenic harm and the Court of Protection https://t.co/IxCuUWYrLv via @OpenJusticeCoP

[Coma Research @CDOCuk]

‘in relation to their physical or bodily liberty…The concept of “deprivation of liberty" is inapt and inapplicable”

Looks like DoLS no longer apply to patients in Prolonged Disorders of Consciousness then.

[Coma Research @CDOCuk]

Deprivation of Liberty Safeguards -
Supreme Court judgment: if ‘catatonic’ eg due to severe brain injury - “they do not have any bodily, physical liberty to exercise…it cannot sensibly be said that anyone is subjecting them to treatment which constitutes a "deprivation"…(1/2)

[Coma Research @CDOCuk]

Deprivation of Liberty needs to involve “element of coercion or externally imposed restrictions…& a person who is so profoundly disabled they are unable to conceptualise or physically achieve freedom is not in fact being deprived of anything.” - Discuss!
https://t.co/7iAtFjDv37

[Neil Allen @NeilAllen39]

So what now is a DOL?!

I’ll tackle it in next Thursday’s DoLS refresher. Tickets available here: https://t.co/mUW3K0Pyv1

[Coma Research @CDOCuk]

A depressing case exposing delay in best interests decisions about ongoing life-sustaining treatment; but good to see the judge highlight concerns & that the judgment will be sent to the Secretary of State for Health + Chief Executive of NHS England.
https://t.co/Ev6M1FdutW

[Coma Research @CDOCuk]

This looks like a very useful webinar on Wednesday - “Attorneys, deputies and decision-making” Tickets, Wednesday, April 15  •  12:30 PM - 1:30 PM GMT+1 | Eventbrite https://t.co/IBFjcHhqcU

[Coma Research @CDOCuk]

Recovery from vegetative’ and minimally conscious states.

Part of our resource for families about Prolonged Disorders of Consciousness

https://t.co/j4LTTdYIhm

[NeurologyLive® @neurology_live]

Frontlines with Frontera returns tomorrow with Episode 2.

This week, NYU Langone Health's Dr. Frontera sits down with Brian Edlow, M.D. for a deep dive into disorders of consciousness—what clinicians need to know, what’s changing in the field, and where research is headed.

Stay tuned for another can't-miss conversation.