CERN Foundation

Committed to improving the care and outcome of people with ependymoma through community support and research efforts.

[CERN Foundation @CERNfoundation]

The CERN Foundation, a program of the National Brain Tumor Society, recently released the third edition of the Ependymoma Guide.

The goal of this guide is to provide basic facts about ependymoma to increase education and awareness about the rare disease: https://t.co/TYmsMJ8vUF

[CERN Foundation @CERNfoundation]

Looking for a meaningful way to involve the whole family in Ependymoma Awareness Day?

Our CERN coloring pages are more than just a creative activity — they are a way to spark important conversations & show support for the brain & spine tumor community: https://t.co/5hJv5Egh0p

[CERN Foundation @CERNfoundation]

Liz P. reminds us all of the power of sharing our stories.

As we look ahead to Ependymoma Awareness Day on June 10, we invite you to register for our virtual program that day & hear from others in the ependymoma community: https://t.co/SSnXKuj5zH

#CERN20 #EpendymomaAwarenessDay

[CERN Foundation @CERNfoundation]

Mark your calendars! Ependymoma Awareness Day will be recognized on Wed., Jun. 10.

This year, as we celebrate 20 years of the CERN Foundation, we invite you to register for our virtual program, where you’ll hear directly from our ependymoma community: https://t.co/SSnXKuj5zH

[CERN Foundation @CERNfoundation]

In honor of CERN’s 20th anniversary & #EpendymomaAwarenessDay (June 10), we invite those impacted by ependymoma to share their story.

Whether survivor or caregiver, your journey drives awareness & shows our community's strength.

Share here: https://t.co/rSOLyBhPPU

#CERN20

[CERN Foundation @CERNfoundation]

Ependymoma Awareness Day will be marked by a virtual program uplifting voices from across the community.

The event highlights the challenges faced by patients, survivors, care partners, researchers & clinicians while raising awareness of this rare cancer: https://t.co/SSnXKuj5zH

[CERN Foundation @CERNfoundation]

Patients, survivors, care partners, and medical professionals from around the world dedicate June 10, 2026, as Ependymoma Awareness Day in honor of the 20th Anniversary of CERN!

Learn more: https://t.co/L4vKZ4DMOk

[National Brain Tumor Society @NBTStweets]

We’re proud to announce a new @NBTStweets-funded research project through @CERNfoundation to advance understanding of spinal #ependymoma — a rare and understudied CNS tumor affecting children & adults.

[National Brain Tumor Society @NBTStweets]

Led by Dr. Eric Holland of @fredhutch, this international effort will create a molecular “reference landscape” to improve diagnosis and inform future treatments. Learn more: https://t.co/trIep1lmup

[National Brain Tumor Society @NBTStweets]

Registration is now open for Head to the Hill!

Join NBTS on Capitol Hill in D.C. from May 3-5, 2026, to share your story & advocate for the #braintumor community.

Register for Head to the Hill today: https://t.co/T0Ayhe1scZ

#Head2Hill

[CERN Foundation @CERNfoundation]

To our ependymoma community, best wishes for a warm and bright 2026.

We are thankful for you!

[CERN Foundation @CERNfoundation]

Read the CERN Foundation Year-End Letter & Report from the National Brain Tumor Society @NBTStweets: https://t.co/GEAVHdbRK3

A sincere thank you for your support!

[CERN Foundation @CERNfoundation]

Dr. Filbin shares her expertise on the importance of thorough tumor testing for ependymoma, which can provide insights into diagnosis, prognosis, and potentially impact treatment decisions: https://t.co/aQrTmbczWt

#epENDymoma

[CERN Foundation @CERNfoundation]

Daniel Godsil shares the story of his young daughter, Betsy, and her journey with ependymoma: https://t.co/p6u0VnoilI

He highlights the lack of information around treatment for ependymoma, which can lead to uncertainty for families making decisions about treatment.

#epENDymoma

[CERN Foundation @CERNfoundation]

Dr. Hadjipanayis discusses the important aspects of navigating a brain or spine tumor diagnosis, particularly ependymoma: https://t.co/uuMQm1in8b

He shares, "You should definitely get a second opinion. If you feel like you should get a third opinion, please do that..."

[CERN Foundation @CERNfoundation]

Megan and Mike Patterson share their personal journey and the importance of seeking second opinions after Megan's diagnosis with grade 3 ependymoma with MYCN amplification: https://t.co/JyRtaIqbox

#epENDymoma

[CERN Foundation @CERNfoundation]

Support the Ependymoma Fund at the National Brain Tumor Society @NBTStweets.

Give Today!

https://t.co/7DldqFBb1W

[CERN Foundation @CERNfoundation]

Leta, a spinal tumor survivor, gives detailed insight into the long road of symptoms leading up to a shocking diagnosis.

A core part of her healing journey was the power of storytelling: https://t.co/pl6xN7rIgZ

[CERN Foundation @CERNfoundation]

Prioritize Your Support to the Ependymoma Fund at the National Brain Tumor Society this Giving Season: https://t.co/7DldqFBb1W

[National Brain Tumor Society @NBTStweets]

Thank you, brain tumor community, for your advocacy.

Nearly 4,500 of you signed our petition urging the NCI to continue dedicated support for pediatric brain tumor clinical trials through the PBTC.

[National Brain Tumor Society @NBTStweets]

Your advocacy helps ensure that the urgent, unmet needs of the brain tumor community continue to be heard and addressed.