CFF Carolinas Central/Eastern Carolinas

CF Foundation Carolinas Central/Eastern Chapter of the CF Foundation. Proudly serving Eastern and Coastal North Carolina. #CysticFibrosis #CureFound #FightCF

[Cystic Fibrosis Foundation @CF_Foundation]

Positive clinical trends seen in the 2020 and 2021 CF Foundation Patient Registry were sustained in 2022, with continued improvement in lung function. Lung function is a primary indicator of health for people with cystic fibrosis. Read more highlights: https://t.co/IUt2p6riQE

[CFF Carolinas Central/Eastern Carolinas @CFF_Carolinas]

Thank you @SenThomTillis for meeting with Noble We’re so proud of Noble for representing the #cysticfibrosiscommunity and sharing his story during @CF_Foundation’s 15th annual Teen Advocacy Day. #CFAdvocacy

[CFF Carolinas Central/Eastern Carolinas @CFF_Carolinas]

We’re so proud of Noble for representing the #cysticfibrosis community and sharing your story with @SenTedBuddNC @SenThomTillis @RepDeborahRoss during @CF_Foundation’s 15th annual Teen Advocacy Day. #CFadvocacy

[Cystic Fibrosis Foundation @CF_Foundation]

You can make a difference for the CF community today. Join our Online Day of Action and tell your member of Congress to support the PASTEUR and HELP Copays Acts. #CFAdvocacy https://t.co/1vmhdNHOPf

[Cystic Fibrosis Foundation @CF_Foundation]

An increasing number of health plans don’t count copay coupons or manufacturer assistance cards toward a patient’s out-of-pocket costs, leaving patients on the hook. Help elevate this issue and ask your legislators to support the HELP Copays Act. https://t.co/1vmhdNHOPf

[CFF Carolinas Central/Eastern Carolinas @CFF_Carolinas]

We’re so proud of Noble for representing the #cysticfibrosis community and sharing your story with @SenTedBuddNC @SenThomTillis @RepDeborahRoss during @CF_Foundation’s 15th annual Teen Advocacy Day. #CFAdvocacy

[CFF Carolinas Central/Eastern Carolinas @CFF_Carolinas]

@SenTedBuddNC @SenThomTillis @RepDeborahRoss: Noble has a powerful message for you about the threat of antimicrobial-resistant infections and the need for Congress’s help getting effective treatments to patients. #CFAdvocacy #PASTEUR

[Cystic Fibrosis Foundation @CF_Foundation]

Nicole Kohr, an adult with cystic fibrosis, realized she's always had the power to advocate. Using her strength of storytelling to advocate for the CF community showed Nicole that a good advocate is someone who is authentically themselves. #CFAdvocacy https://t.co/6ukta1f1mE

[Cystic Fibrosis Foundation @CF_Foundation]

Teens from across the country are joining us for our 15th annual Teen Advocacy Day! Help to amplify their impact by urging your members of Congress to support the #PASTEUR Act and the HELP Copays Act. #CFAdvocacy https://t.co/1vmhdNHOPf

[Cystic Fibrosis Foundation @CF_Foundation]

Join our Online Day of Action and tell your members of Congress: Support the PASTEUR Act.📣 #CFAdvocacy https://t.co/vSVJ4JL24D

[Cystic Fibrosis Foundation @CF_Foundation]

More than 2.8 million people get an antibiotic-resistant infection in the U.S. each year. People with #cysticfibrosis face an increased risk for difficult-to-treat infections. We need new antibiotics now, and we’re asking Congress to help. #CFAdvocacy

[CFF Carolinas Central/Eastern Carolinas @CFF_Carolinas]

Add your voice to the thousands of volunteers who are urging their members of Congress to support legislation critical to the #cysticfibrosis community today.
Take action with us: https://t.co/5x1UZT97UV

[Cystic Fibrosis Foundation @CF_Foundation]

Today, we joined @ThePFID, @saveantibiotics, @pewhealth, @IDSAInfo, and @IAmBiotech to urge Congress to advance the #PASTEUR Act, which would transform the broken antimicrobial pipeline and help us to #SquashSuperbugs. We can’t any longer to combat #AMR. https://t.co/gqOdy5rBvW

[Cystic Fibrosis Foundation @CF_Foundation]

What’s a sweat test? It’s considered the most reliable for diagnosing #cysticfibrosis. The test is painless and it measures the concentration of salt in your or your baby’s sweat. https://t.co/1qp1E0UwZH

[CFF Carolinas Central/Eastern Carolinas @CFF_Carolinas]

Hear the perspective of four adult cystic fibrosis community members as they share their experiences with chronic illness and how life with CF is evolving.
This event will be hosted virtually.
Register now at https://t.co/LWKyGcQlJS

[CFF Carolinas Central/Eastern Carolinas @CFF_Carolinas]

Hear the perspective of four adult cystic fibrosis community members as they share their experiences with chronic illness and how life with CF is evolving. This event will be hosted virtually.
Register now and the Zoom link will be emailed.

https://t.co/xJpDLVKe3h

[Cystic Fibrosis Foundation @CF_Foundation]

“Knowing that everyone here has gone above and beyond to contribute to this dream of a cure inspires me to do more. Learning about the advancements in science tells me that we’re on the right path and that we’re going to get there.” – Ray Poole #CFFVLC

[Cystic Fibrosis Foundation @CF_Foundation]

“We are not done – and will not be done – until every person with cystic fibrosis has a treatment and a cure so they can live their dream. To be able to say YES to the experiences they want to based on their heart — not what CF limits them to do.” – Julie Riedy #CFFVLC

[Cystic Fibrosis Foundation @CF_Foundation]

We’re live from #CFFVLC 2022! At our 18th annual conference, we’re excited to hear from volunteers, such as event co-chairs Ray Poole and Julie Riedy, in addition to Foundation leadership including Michael Boyle, MD, Steven Rowe, MD, and more.

[CFF Carolinas Central/Eastern Carolinas @CFF_Carolinas]

When your prescription isn’t covered by your insurance, be sure to ask if it can be covered under the medical portion of your plan benefits, or if there are any alternatives that your plan will cover.

[Cystic Fibrosis Foundation @CF_Foundation]

When your prescription isn’t covered by your insurance, be sure to ask if it can be covered under the medical portion of your plan benefits, or if there are any alternatives that your plan will cover. https://t.co/TcfXGdFn11