We are providing up to $3.9 million to TB Alliance to conduct lab testing of a compound that could eventually be used to treat infections caused by nontuberculous mycobacteria (NTM) in people with cystic fibrosis.
Itβs an exciting day for the CF community! The FDA has approved the use of Trikafta for children with CF ages 2-5 years who have at least one copy of the F508del mutation or one copy of certain mutations. Thank you for your continuous support that makes our progress possible.
CALLING ALL CF CARE GIVERS!!
ONLY A FEW SPOTS LEFT!
If you are a CF caregiver and interested in joining us for a spa like experience full of relaxation and socialization
RSVP DEADLINE: April 26, 2023
Thank you!
RSVP: [email protected]
A HUGE thank you goes out to our 2023 Great Strides Sponsors!! Thank you for your support and dedication towards our mission of finding a cure for all the people living with Cystic Fibrosis!ππ
A 20 mile journey of passion, determination and personal triumph. Join us on the Escarpment Trail, in the Catskill mountains as we hike towards a cure for Cystic Fibrosis!
CALLING ALL VOLUNTEERS!
We need Great Strides day of Volunteers! If you are interested, please reach out to the New Jersey Chapter at 973-656-9200 or [email protected] for more information!!
THANK YOU! GO GREAT STRIDES
Join us on Saturday, October 14th as we Cycle through the most scenic landscapes in New Jersey to support those living with Cystic Fibrosis! π²
For more information, please contact Christine McDonald
Register at https://t.co/z8C8t2DkcW
CALLING ALL GOLFERS!β³
Join us for The 2nd Annual CF Cup Tournament being held at a NEW location this year!
On May 22, 2023 at Essex Fells Country Club!
For information or to sign up go to https://t.co/YGEcxcrNdL
LAST CALL FOR FIGHTER SHIRTS!
Friday, April 7th is the deadline to order your Fighter Shirts for Great Strides!
If you haven't ordered yours yet, now is the time!
We have new fighter shirts! To request one for Great Strides, please complete this form by March 30! https://t.co/VMOMYUuoeS
Don't wait! Request yours today to wear at your 2023 Great Strides walk!
Walk on the Wild Side and join us at West Orange Great Strides, Saturday, May 20 at 10:00 AM.
All registered walkers will receive FREE admission to Turtle Back Zoo for the day!!
Register today at https://t.co/n3DeMjeIom
Weβre so proud of Bill Squires and Joe for telling their story to urge members of Congress to support issues important to people living with CF.
Thanks to everyone who advocated during March on the Hill and our Online Day of Action.
#CFAdvocacy
Stop by and visit Nicole today at The FINE GRIND in Little Falls, NJ for a hot cup of coffee on this wintery day!ββοΈ
Nicole would love to see you and give you a free gift!!
#TEAMTUESDAY
We are thrilled to have 4 more teams join for Great Strides!π
If you haven't resisted yet please click the link https://t.co/i5RbkDyMmh
It's been awhile since we have seen you!
Stop by and chat with us and learn more about our chapter events and the latest foundation updates.β
We would love to see you and give you free gift! π
Congratulations to Danny Garcia, who will be receiving our chapter's Hero of Hope award!
Awarded to a volunteer without direct connection to CF who furthers fundraising and/or awareness.π
Congratulations to Cole Schotz, who will be received our chapter's Corporate Team of the YEAR Award!
Awarded to one chapter corporate fundraising team!!π
Calling all CF caregivers!
SPACE FOR THIS CF CARES EVENT IS LIMITED TO 15 PEOPLE!
The first fifteen CF caregivers to RSVP will be able to attend.
Thank you!
RSVP: [email protected]
Add your voice to the thousands of volunteers who are urging their members of Congress to
support legislation critical to the #cysticfibrosis community today.
Take action with us: https://t.co/5Cl8g27XGb