Today, we announced a first-of-its-kind collaboration with Pioneering Medicines, a division of Flagship Pioneering, to accelerate the development of genetic-based therapies for people with cystic fibrosis. https://t.co/cPvG73S7J0
Set your DVR! Tonight's episode of Top Chef features longtime CFF supporter and Larry VandenBrink's Dinner Gala Chef Vitaly Paley as a guest judge! #topchef#fightcf#cysticfibrosis
Thank you to everyone who attended one of our three Xtreme Hike Info Sessions. Our last one was held this morning. If you are interested in viewing a recording, please contact us! [email protected]
We are building a playlist that embodies the spirit of our local CF community. Send us your favorite song, artist and an explanation as to why you love it! You might hear the song played at Great Rides on May 8th!
This Valentine’s Day, send a virtual hug to someone you love by joining our 65 Roses Club today. Consider becoming a monthly donor and have your gifts serve as a virtual hug all year long. To join, visit https://t.co/LIarY4SZxy
Preparing for a transplant can be physically and emotionally overwhelming. Connect with others with #cysticfibrosis, their family members, and caregivers age 16+ going through similar experiences at CF MiniCon: Transplant on February 27. https://t.co/cKHdpuqMA7
Thank you to our newest ValenTeams! In total, 29 teams are signed up on 2/9! Register your team for Great Rides and help us reach our goal of 50 teams by Valentine's Day!
https://t.co/zVjNAgsBnw
Who will be named our Volunteer Partner of the Year? Join us next Thursday at 6pm on Facebook Live for our annual Volunteer Awards Celebration to find out!
This week the Cystic Fibrosis Registry Global Harmonization Group, including the Cystic Fibrosis Foundation, published findings from the first global study on the impact of COVID-19 on children with cystic fibrosis in the Journal of Cystic Fibrosis.
https://t.co/N0PtgLWYwm
Thank you to our incredible friends at Valvoline Instant Oil Change! We are less than halfway through the month of December and @Speedy_The_Dog has already raised over $20,000 for CFF Oregon/SW Washington with their in store pin-up campaign. WOW!!!
All CF "Grampions" are welcome and encouraged to join our online holiday themed gathering on Wednesday, December 16th! See the event link for details: https://t.co/5NTvbdLoeN
You are invited to join us virtually and enjoy the Breath of Life Award presentation to Preston W. Campbell, III, MD, and special guest appearances from Matt Rogers, Victoria Shaw, the sINgSPIRE Virtual Choir, and more! Reserve your seat today: https://t.co/Ed4PTKRlpU
CFF announced a new research award of up to $2.4 million to Calithera Biosciences Inc. to advance a potential treatment to reduce infections in the lungs of people with CF. We also committed up to $14 Million in funding to Synspira Therapeutics. Check out https://t.co/4v6SitgVnY
Breck Gamel shares how she makes decisions while managing ever-changing CDC recommendations with balancing her family's physical & mental health. Check out her blog to find out what works for her: https://t.co/bHqXoUS6P7