CFF Western NY

The @CF_Foundation Western New York Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.

[CFF Western NY @CFF_Western_NY]

We're incredibly proud of Bailee Goldman for representing the #cysticfibrosis community and sharing your personal story with @RepLangworthy @SenSchumer @gillibrandny during @CF_Foundation's 16th annual Teen Advocacy Day. #CFAdvocacy

[CFF Western NY @CFF_Western_NY]

Way to go, Emily & Patricia Bennett! We're so proud of you for representing the #cysticfibrosis community during @CF_Foundation's March on the Hill. We can't wait for you to share your with @RepJoeMorelle @SenSchumer @gillibrandny #CFAdvocacy

[Cystic Fibrosis Foundation @CF_Foundation]

Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. The term #65Roses is often used by children with #cysticfibrosis to pronounce the name of their disease, making roses a meaningful symbol in the CF community.

[CFF Western NY @CFF_Western_NY]

Updates from the CF Foundation of Western New York: https://t.co/pMteP7mVEq

[Cystic Fibrosis Foundation @CF_Foundation]

We are investing up to $5 million in Clarametyx Biosciences to develop a drug that could help address difficult-to-treat bacteria such as chronic Pseudomonas aeruginosa, a major cause of lung infections in people with #cysticfibrosis.

[CFF Western NY @CFF_Western_NY]

Happy National #GrandparentsDay to all the special grandpersons who support the CF community.

[CFF Western NY @CFF_Western_NY]

Western New York Chapter Newsletter Updates: https://t.co/dc4CTbf9yZ

[CFF Western NY @CFF_Western_NY]

Western New York Chapter Newsletter Updates: https://t.co/44bL6ur3rg

[CFF Western NY @CFF_Western_NY]

Western New York Chapter Newsletter Updates: https://t.co/ChdtaaQ5J5

[CFF Western NY @CFF_Western_NY]

Western New York Chapter Newsletter Updates: https://t.co/znq411gUQs

[CFF Western NY @CFF_Western_NY]

Register for NextBreath, a free, online event June 13-14, where people with CF and their family members can come together to find community and connection with their peers.

Register now: https://t.co/I0iHCLr9Z2

[CFF Western NY @CFF_Western_NY]

It’s #NVW, and we want to recognize the relentless efforts of our volunteers! You truly put the YOU in volunteer.

https://t.co/3YjSUu2vX0

[CFF Western NY @CFF_Western_NY]

Western New York Chapter Newsletter Updates: https://t.co/LnRd4CvTcO

[CFF Western NY @CFF_Western_NY]

Western New York Chapter Newsletter Updates: https://t.co/qxYtSB8ph2

[CFF Western NY @CFF_Western_NY]

#NewYork: Our fight to restore the Adult #cysticfibrosis Assistance Program is not over! Add your voice and encourage your state legislators to restore the ACFAP for good! https://t.co/NPmVwj3yRV #CFAdvocacy

[CFF Western NY @CFF_Western_NY]

Western New York Chapter's Updates: https://t.co/WbAA3faj1L

[CFF Western NY @CFF_Western_NY]

Add your voice to the thousands of volunteers who are urging their members of Congress to support legislation crucial to the #cysticfibrosis community today.

Take action with us: https://t.co/u337XkD9Zb

[CFF Western NY @CFF_Western_NY]

@RepJoeMorelle @SenSchumer @SenGillibrand, on behalf of the #cysticfibrosiscommunity, Chris Kvam from Rochester, NY and Colleen & Fran Argentieri from Hornell, NY urges you to cosponsor the PASTEUR Act to jump start the development of new antibiotics. #CFadvocacy

[CFF Western NY @CFF_Western_NY]

Western New York Chapter Updates: https://t.co/PMiZWpU0m2

[CFF Western NY @CFF_Western_NY]

Virtually gather with hundreds of adults with cystic fibrosis at BreatheCon February 23-25 for 1-1 networking, panels, affinity groups, happy hours, and so much more.

https://t.co/t7P09W6YNR