CFNA

The Cystic Fibrosis Nursing Association. A group of specialist nurses who specialise in Cystic Fibrosis from every region in the UK. Our opinions are our own

[CFNA @CFNA16]

Today the CFNA said goodbye to one of the greats. Aileen Mallinson has officially retired as CF Nurse Specialist at the Royal Hospital for sick children, Edinburgh. Thank you Aileen for all you have done over the years for the CFNA. We will all miss you! Enjoy the peace 🥳🥳🥳

[Cystic Fibrosis Trust @cftrust]

Make sure you've registered to reserve your place: https://t.co/XGNM0fZY6n

[CFNA @CFNA16]

This is such exciting news!!

[Cystic Fibrosis Trust @cftrust]

The licensing of #Kaftrio today marks a step change in the treatment of #cysticfibrosis. Read our full news story here: https://t.co/0uOt9gn2Kn

[CFNA @CFNA16]

Was a pleasure being able to take part in this this evening! Sorry for the technical delay!

[Cystic Fibrosis Trust @cftrust]

20 minute reminder for our CF Live event on 'Returning and settling back into education'. Our expert panel will help to answer some of the questions you may have and discuss what support is available. Register now: https://t.co/nZxERMvIPD #cysticfibrosis

[Teesside Cystic Fibrosis Centre @TeessideCF]

Lots of anxiety about returning to school for many so this hopefully will reassure our families or give them the opportunity to as questions. Thank you @cftrust. @rajjayaraj @clairelord17 @figgi12

[CFNA @CFNA16]

Morning everyone. Last chance saloon for any CF nurses both adult and paediatric who would like to sit on the zoom panel supported by the CF trust to discuss the starting back of schools across the UK. If anyone is interested please can you message or retweet 👍👍

[CFNA @CFNA16]

Good morning!! Are there any Scottish paediatric nurses who would like to volunteer for the zoom panel meeting regarding the starting back of schools in the UK. This is a panel supported by the CF trust. Please can you get in touch with me if so. Thank you 😎

[CFNA @CFNA16]

@awally77 Can you private message me with your email and I will forward them over

[CFNA @CFNA16]

**Attention ALL CF nurses**
Would anyone be interested in taking part in a zoom panel meeting on 19th August facilitated by the CF trust. This is for parents of children with CF/adults with CF who have children and/or teachers regarding the reopening of schools.

[CFAdultNewcastle @cf_newcastle]

If you have CF please consider completing this survey for the ⁦@cftrust⁩: Exploring your clinical trial opportunities (2020) Survey. https://t.co/cO4ncT9L35

[CFNA @CFNA16]

This is truly wonderful news!!

[Cystic Fibrosis Trust @cftrust]

"This will truly save lives", our Chief Executive David Ramsden on today's news for the #cysticfibrosis community.

[Cystic Fibrosis Trust @cftrust]

This is a critical step on the road to ensuring that the Vertex triple therapy is licensed for all who would benefit from it and available on the NHS without delay.
We will not stop until life-saving drugs are available for everyone with cystic fibrosis in the UK.

[EU Medicines Agency @EMA_News]

‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the treatment of #cysticfibrosis in #patients aged 12 years and older: https://t.co/tvl0aKrLEX

[Cystic Fibrosis Trust @cftrust]

Update for those shielding in England - @MattHancock has announced a pause to shielding from 1st August. From 6th July shielding will be relaxed but strict social distancing should still be adhered to. Find out more here: https://t.co/Wgdj7iUoEW

[CFAdultNewcastle @cf_newcastle]

Plans to ease shielding for clinically vulnerable from the 6th July- https://t.co/eaRfguXZm9

[CFNA @CFNA16]

My little one and my wife wearing yellow for CF day

[Cystic Fibrosis Trust @cftrust]

As #CFWeek shines a spotlight on the challenges people with #cysticfibrosis face in balancing their condition with everyday life, our @YouGov poll reflects how little is known outside of the CF community of the sacrifices made every day to stay healthy. https://t.co/AgtSRN4Wdi

[CFNA @CFNA16]

Don’t forget!! TGI....wear yellow friYAY!

[Elliston Mrs Hardie @EllistonMentor]

Are you wearing yellow on Friday? We are 💜 @cftrust @

[CFAdultNewcastle @cf_newcastle]

At the start of @cftrust #CFWeek we want to say a big hello 👋🏻 to the #CFCommunity . We may be spending time apart right now but we are very much #InThisTogether to support you as a team. Keep an eye out for messages from the different members of our MDT this week #cysticfibrosis