CF Nevada

The Nevada Chapter is helping to advance @CF_Foundation’s mission to find a cure for every person with cystic fibrosis.

[Cystic Fibrosis Foundation @CF_Foundation]

Advocates from Ohio are taking on Capitol Hill! #CFAdvocacy

[CF Nevada @CFNevada]

Way to go, Shannon, Dan, Elizabeth & Patt! We’re so proud of you for representing the #cysticfibrosis community during @CF_Foundation’s March on the Hill. Thank you for sharing your story with @SenCortezMasto to support the HELP Copays Act. #CFAdvocacy

[Senator Cortez Masto @SenCortezMasto]

Thank you to the @CF_Foundation for your advocacy for our Cystic Fibrosis community in Nevada. It's inspiring to hear about the real progress made in treatment and care, and I'm proud to support all of you in your continued work to find a cure.

[CF Nevada @CFNevada]

.@RepSusieLee @senjackyrosen @sencortezmasto, as a constituent and someone personally affected by #cysticfibrosis, I’m calling on Congress to prioritize the needs of the CF community. I urge you to cosponsor and pass the HELP Copays Act and the PASTEUR Act. #CFadvocacy

[Cystic Fibrosis Foundation @CF_Foundation]

College students and recent graduates are invited to apply for the Tomorrow’s Leaders College Program. During this free, virtual program from August 8-17 you will build leadership skills and network with like-minded peers. Learn more and apply today: https://t.co/HcxE9NCdpV

[CF Nevada @CFNevada]

Northrn NV Great Strides Carson City, June 10th register today https://t.co/cgPrsOzL3B

[Cystic Fibrosis Foundation @CF_Foundation]

May is Cystic Fibrosis Awareness Month!

[CF Nevada @CFNevada]

Today, because of improved medical treatments and care, more than half of people with cystic fibrosis are 18 and older. Many people with CF can expect to live healthy, fulfilling lives into their 30s, 40s, and beyond. #CFAwarenessMonth

[Cystic Fibrosis Foundation @CF_Foundation]

We recently agreed to provide up to $15.5M to Anagram Therapeutics to conduct clinical trials of a novel enzyme replacement therapy that would help improve the digestion of people with #cysticfibrosis. Anagram expects to start a Phase 1 trial this summer.
https://t.co/g0RPfAOLbZ

[Cystic Fibrosis Foundation @CF_Foundation]

We are investing up to $2M in Nanite Inc. to explore a new way to deliver genetic therapies into the lungs of people with #cysticfibrosis. Polymer nanoparticles could potentially be safer and may be more versatile and stable than other delivery methods. https://t.co/B04XMHtqN2

[CF Nevada @CFNevada]

Thank you @EmilyEllis_Esq, Pat, and Dan for sharing your story with @SenCortezMasto at yesterday's March on the Hill! #CFadvocacy

[Cystic Fibrosis Foundation @CF_Foundation]

Thank you, @SenCortezMasto, for meeting with our advocates today to discuss the importance of addressing antibiotic-resistant infections. #CFAdvocacy

[CF Nevada @CFNevada]

@SenJackyRosen, on behalf of her child with #cysticfibrosis, @EmilyEllis_Esq from Nevada urges you to cosponsor the PASTEUR Act to jump start the development of new antibiotics. #CFadvocacy

[CF Nevada @CFNevada]

@SenCortezMasto , on behalf of their child with #cysticfibrosis, @EmilyEllis_Esq from Nevada urges you ensure access to affordable, high-quality care and treatments by cosponsoring the PASTEUR Act and HELP Copays Act. #CFadvocacy

[CF Nevada @CFNevada]

@repdinatitus, on behalf of their child with #cysticfibrosis, @EmilyEllis_Esq from Nevada urges you to ensure access to affordable, high-quality care and treatments by cosponsoring the PASTEUR Act and HELP Copays Act. #CFadvocacy

[CF Nevada @CFNevada]

Thank you, @EmilyEllis_Esq for representing the CF Nevada community and all those living with CF at this year's #MarchontheHill! #CFadvocacy

[Emily Ellis @EmilyEllis_Esq]

Thank you @MarkAmodeiNV2 for always being a champion for our #CysticFibrosis community! We truly appreciate your dedication to our mission. @CF_Foundation #CFStandforCureFound

[Cystic Fibrosis Foundation @CF_Foundation]

On International Women's Day, we recognize trailblazing women such as Doris Tulcin, who helped found the Cystic Fibrosis Foundation in 1955. #IWD2023

[Cystic Fibrosis Foundation @CF_Foundation]

Join our Online Day of Action and tell your members of Congress: Support the PASTEUR Act.📣 #CFAdvocacy https://t.co/vSVJ4JL24D

[Cystic Fibrosis Foundation @CF_Foundation]

More than 2.8 million people get an antibiotic-resistant infection in the U.S. each year. People with #cysticfibrosis face an increased risk for difficult-to-treat infections. We need new antibiotics now, and we’re asking Congress to help. #CFAdvocacy

[Cystic Fibrosis Foundation @CF_Foundation]

Run, don’t walk... registration for #BreatheCon is open! Virtually gather with hundreds of adults with cystic fibrosis February 23-25 for 1-1 networking, panels, affinity groups, happy hours, and so much more. We can’t wait to see you there! Register now: https://t.co/9l0bNQSQ0T

[Cystic Fibrosis Foundation @CF_Foundation]

Congratulations to the winner of our #BreatheCon swag design contest, Kelly Marie McHale Talarico, a 31-year-old with #cysticfibrosis! Her custom design will be printed on this year’s swag and created into a gif for social media. Thank you to everyone who entered the contest!