CFUCDF

Director of Connecting Families Urea Cycle Disorders Foundation. Excited to be spreading awareness and educating on our rare disease.

[ArcturusRx @ArcturusRx]

The @ArcturusRx team participated in the @CFUCDF Family Camp 2024! We were honored to spend the day connecting with patients and families affected by #UreaCycleDisorders and discussing our ARCT-810 for those living with #OTCDeficiency.

#RareDisease #OTCD #mRNATherapeutics #ARCT

[CFUCDF @CFUCDF]

A Weekend with Rare Friends; Thank you to the Carpenter Family for coming down to spend time with us the past few days. 💓
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Connection with people who share your same struggles and lifestyle is so vitally important. Especially in communities like ours.

[CFUCDF @CFUCDF]

With having a Rare & Invisible Illness comes a lot of people making assumptions about your health; People assume your illness is an overdramatized and overexaggerated issue.
This has led to a lot of feelings of Isolation for me and others personally.

[CFUCDF @CFUCDF]

Just had a meeting with Ultragenyx and wanted to share … you will be compensated for your time 😊

Also information on PHASE 3

https://t.co/TLGbzPeOXn

[CFUCDF @CFUCDF]

REGISTRATIONS FOR OUR UCD MEETUP IS OPEN !!!!

This meeting will take place in Philly on October 6/7 😊

Please register early as spaces fills up quickly.

Can’t wait to see you 🤍

Travel stipends are available and limited to those who qualify🤍🦓

https://t.co/qx4RFSH16l

[CFUCDF @CFUCDF]

https://t.co/zXVCILa4G1

[CFUCDF @CFUCDF]

https://t.co/yjR2KwTA6N

[Acer Therapeutics @AcerTherapeutic]

OLPRUVA™ commercial launch progressing: Acer engaged in discussions with payers representing a substantial majority of covered lives https://t.co/7hREP3KqgR

[CFUCDF @CFUCDF]

@HorizonNews @PatientView Love working with Horizon !!!

[Horizon @HorizonNews]

We’re honored to be recognized as a top company by rare disease patient groups globally, including a No. 2 ranking in overall corporate reputation, in the latest 2022 @PatientView ‘Corporate Reputation of Pharma’ survey. Learn more: https://t.co/UsViq4ZvVRWe’re honored to be recognized as a top company by rare disease patient groups globally, including a No. 2 ranking in overall corporate reputation, in the latest 2022 @PatientView ‘Corporate Reputation of Pharma’ survey. Learn more: https://t.co/UsViq4ZvVRWe’re honored to be recognized as a top company by rare disease patient groups globally, including a No. 2 ranking in overall corporate reputation, in the latest 2022 @PatientView ‘Corporate Reputation of Pharma’ survey. Learn more: https://t.co/UsViq4ZvVRWe’re honored to be recognized as a top company by rare disease patient groups globally, including a No. 2 ranking in overall corporate reputation, in the latest 2022 @PatientView ‘Corporate Reputation of Pharma’ survey. Learn more: https://t.co/UsViq4ZvVRWe’re honored to be recognized as a top company by rare disease patient groups globally, including a No. 2 ranking in overall corporate reputation, in the latest 2022 @PatientView ‘Corporate Reputation of Pharma’ survey. Learn more: https://t.co/UsViq4ZvVR.

[CFUCDF @CFUCDF]

@ArcturusRx Great having you !!!
Thank you for supporting us 🤍🦓

[CFUCDF @CFUCDF]

Guess who came to play with our families at camp 🤍🦓 @HorizonNews

[CFUCDF @CFUCDF]

Medicines to avoid !!! https://t.co/SQ8Fok6k36

[CFUCDF @CFUCDF]

Having a rare disease/being chronically ill doesn’t mean things are all positivity and sunshine. We’re human. We still experience those feelings of wishing we could change ourselves, or going back and forth with acceptance of ourselves. It’s a journey 🤍🦓

[CFUCDF @CFUCDF]

We had an amazing time at our UCD Camp !!! These kiddos had so much fun 😊 Huge THANK YOU to our sponsors @HorizonNews @AcerTherapeutic @aegleabio @ArcturusRx @EVERSANAcompany

[CFUCDF @CFUCDF]

Had a wonderful time with the gang from @SimuLyve 🎥

[CFUCDF @CFUCDF]

@SimuLyve we had a great time filming with you and your team 🎥

[CFUCDF @CFUCDF]

Life changer !!!! https://t.co/zqWvdA68jI

[CFUCDF @CFUCDF]

@ArcturusRx @Cookies4Cures @sophiesneighbor @CureSMA @MarfanFdn Thank you @ArcturusXR @Cookies4Cures 🦓🍪🤍

[ArcturusRx @ArcturusRx]

Last Friday @ArcturusRx partnered with @Cookies4Cures to host a bake along with @ArcturusRx' CEO, Joe Payne, and founder of @Cookies4Cures, Dana. We made cookies and raised money for @CFUCDF, @sophiesneighbor, @CureSMA, and @MarfanFdn