Our little boy has RSV, flu & adenovirus-He’s already on antibiotics. Waiting to see if we get tamiflu or if no point as had it a few days already\CF team say normally in hospitalwith rsv so he is coping amazingly our little fighter @cftrust@CF_Foundation@CF_65roses#superhero
As the crazy search for All Ireland tickets continues, I'm shamelessly asking anyone who might know of 2 going a-begging I'd be so grateful 🙈🙏 I've a @Kerry_Official -mad lady here talking as if she's already going, so any help would be so very much appreciated 🙏🤞🙏💚💛
CF Awareness Month may be coming to a close, but our work isn’t finished until CF stands for Cure Found. How do you plan on raising #CFAwareness all year long?
G8t to be with @CFAustralia’s Nettie Burke discussing the Morrison Government’s $65 million investment to establish the first dedicated Cystic Fibrosis Specialist Unit in NSW.
A year tomorrow since I lost something that can never be replaced. A year on I'm still broken and lost give people with Cf and breathing problems.the medication and treatment to help live longer and healthier lives.
Love you Elly Welly love silly Daddy Waddy
Cannot believe we got the phone call from RCH to say Orkambi was ready to be picked up!!!!! @GregHuntMP thank you so much and @Nettie486 thank you so so much as well. 🌹🌹🌹🌹🌹🌹🌹
ONLY 5 DAYS TO GO! 🐧❄️🐧
Have you bought your raffle ticket yet for a chance to see Antarctica? With only 250 tickets on sale, you'll never have a better chance to win such an amazing prize.
Thanks to the very generous folks at Antarctica... https://t.co/Wju15jUACv
https://t.co/go8vtitcuw All people with CF will also be aware of the increased risk of sunburn on this drug & having to avoid taking dairy products within a couple of hours of taking it makes for another headache Perhaps access to #Orkambi will reduce the need to take such drugs?
It’s a week until Wear Yellow Day and the perfect weekend to buy something bright and bold for your #CFYelfie. Don’t take our word for it, we’ve a got a different kind of doctor to help remind you all!
No one should face CF alone.
Kate's survival is a gift. The birth of Molly is a miracle.
All the work we do with families, providing services and equipment is only possible with your generous support.
Let's make a difference... https://t.co/k6CY6GCu7k
Happy Birthday to my special little girl. 8 years old today. How times fly.....absolute inspiration with all you have been through and a role model for your younger brother on how to fight Cystic Fibrosis. 🌹🌹❤️❤️ #WeNeedOrkambi#OrkambiNow