CLLSA

UK #charity dedicated to education & support for Chronic Lymphocytic Leukaemia - the most common #leukaemia in adults. #cancer #haematology #bloodcancer #CLL

[CLLSA @CLLSupport]

Two surveys are now open:
🩺 One for people living with CLL/SLL in the UK
https://t.co/5VpFdopYXR
❤️ One for their partners, family, and friends
https://t.co/fVmGCVBhnA

Your experiences will help shape future support.
#yourvoicematters
#patientexperience
@UkCllforum

[CLLSA @CLLSupport]

The recordings from our recent Leeds Conference are now available to watch on our YouTube channel.

https://t.co/q4OM4pWlf1

[CLLSA @CLLSupport]

Opportunity to live your inner #strictly 🕺💃

Email [email protected] for more information, or to take part.

#latindanceclass
#cll #fatigue #research

[CLLSA @CLLSupport]

The treatment is available for restricted use on the NHS via the NHS Scotland Patient Access Scheme (PAS)

Further information is available via the SMC website: https://t.co/H7PDRO7LhM

#CLLtreatment
#Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿

[CLLSA @CLLSupport]

The Scottish Medicines Consortium (SMC) approved an additional treatment for CLL earlier this month, on 13th April. The combination therapy of acalabrutinib and venetoclax with or without obinutuzumab was approved for first line therapy in previously untreated patients with CLL.

[CLLSA @CLLSupport]

Invitations to book have been emailed to everyone on our mailing list. If you would like to attend the conference but haven't joined our mailing list you can do so here: https://t.co/oIBO1R8ALg

You will receive an invitation to book shortly afterwards.

[CLLSA @CLLSupport]

📣 Bookings are now open for our free to attend Birmingham Conference.

Our keynote speaker is Dr Helen Parry, Honorary Consultant Haematologist at The Queen Elizabeth Hospital, Birmingham. Helen will be joined by Lewis Oxley, Specialist Dietician - Haematology and Oncology.

[CLLSA @CLLSupport]

COULD DANCE HELP WITH FATIGUE IN CLL? A research study recruiting in the South West of England.

Email [email protected] for more information.

#dance
#danceclasses
#fatigue

💃🕺

[CLLSA @CLLSupport]

The link to watch the livestream of today's conference has been emailed to everyone on our mailing list. Check your inbox 😊 The conference starts at 10am

[CLLSA @CLLSupport]

On #WorldBookDay why not download a free copy of our information booklet.

https://t.co/kTf3Bmf7ZS

#information #booklet

[CLLSA @CLLSupport]

If you missed our recent webinar about the latest research into CLL and SLL, the recording is now available to watch on our YouTube channel

https://t.co/k3W3jTRFEK

[CLLSA @CLLSupport]

Funding like this is vital to small charities like ourselves and will ensure we can continue to provide people affected by CLL or SLL with the information and support they need, when they need it, in a form that works for them.

[CLLSA @CLLSupport]

We are delighted to announce that we have received a grant of £30,000 from the Postcode Lottery Community Trust. This has been made possible by players of People's Postcode Lottery - thank you so, so much. 😊

#peoplespostcodelottery
#thankyouforyoursupport

[CLLSA @CLLSupport]

On World Cancer Day, let’s honour those we’ve lost, support those living with cancer, and raise awareness for better prevention and treatment options.

#WorldCancerDay #UnitedByUnique #bloodcancer #ChronicLymphocyticLeukemia

[CLLSA @CLLSupport]

Here are our conference dates for 2026. Please make a note in your diary, invitations to book will be sent out prior to each event.

We also hope to hold a smaller face to face event in Swansea. It is being planned for July, date tbc.

[CLLSA @CLLSupport]

Link for people in the UK with CLL/SLL:

https://t.co/Dh1ci16RUr

Link for family/friends of a similar age in the UK who do not have CLL/SLL:

https://t.co/ukuBu8RQkd

[CLLSA @CLLSupport]

You will be invited to take part in the survey in a few days - if not, check your junk folder or email [email protected]

The survey is open to everyone in the UK subscribed to CLL Support's email list with a diagnosis of CLL or SLL, whether suffering from fatigue or not.

[CLLSA @CLLSupport]

This is a really important piece of research. Fatigue affects many people with CLL and SLL, but is often dismissed by doctors.

If you haven't subscribed to receive our emails you can do so here: https://t.co/oIBO1R8ALg

[CLLSA @CLLSupport]

The CLL community have lost an amazing advocate. We send our deepest condolences to Lelia's family and friends 💗

Lelia really wanted the CLL Forum to flourish. We can pay no better tribute to Lelia at this time than to share the Forum's in memoriam post.

[UK Chronic Lymphocytic Leukaemia (CLL) Forum @UkCllforum]

IN MEMORIAM

The @UkCllforum profoundly regrets the passing of Lelia Duley.

An amazing academic career and later on a trailblazer in CLL patient representation-activism.

She has left an eternal legacy and will be dearly missed.

Our deepest thoughts are with her family.

#CLL

[CLLSA @CLLSupport]

The recordings from our recent Newcastle conference are now available on our YouTube channel

https://t.co/SjkkBimnEb