Cerebral Palsy Research Network

Cerebral Palsy Research Network | Community | Research | Education | A diverse community that moves forward #CP research & quality healthcare.

[Cerebral Palsy Research Network @CPRN_org]

I am excited to be presenting at the University of Michigan's Learning Health System Collaboratory. Tune in if you want see what 10 years can get you! https://t.co/NzYIdLvs80

[Cerebral Palsy Research Network @CPRN_org]

We are extending our work into the NICU with early detection and now a registry for hypoxic schemic encephalopathy (HIE). Join us for a webinar with @HopeforHIE and Principla Investigator @DanielleGBarber. Register at https://t.co/33gyu1ICe2.

[Cerebral Palsy Research Network @CPRN_org]

@NCHPAD Love @NCHPAD programs and their partnership. Very "can do" with glowing results from our #cerebralpalsy community members that participate. Learn more at https://t.co/6eq8Pgjkay

[NCHPAD @NCHPAD]

In our latest partner spotlight we caught up with Paul Gross, President, Chief Executive Officer and Co-Founder of the Cerebral Palsy Research Network (@CPRN_org)! Learn more about the great work being done at CPRN and our partnership in the blog below!

https://t.co/J0fbn0BNhy

[Cerebral Palsy Research Network @CPRN_org]

Great work! If this can create improved practices uniformly, it will greatly benefit what we can do for the CP community and "protocolize" care more.

[Bhooma Aravamuthan MD DPhil @drbhooma]

The *NEW* @AANmember Child Neurology Quality Measures set opens for public comment on March 8! Amongst the new measures are 2 I'm esp. proud of: genetic testing for everyone with #cerebralpalsy, and documentation of GMFCS for everyone with #cerebralpalsy

[Cerebral Palsy Research Network @CPRN_org]

Thrilled to have hired Joyce Trost, PT, PhD as our Director of Registries! Her track record @GilletteChildrn as their Director of Research will serve our growth and research needs. https://t.co/PUWvS33Dbp

[Cerebral Palsy Research Network @CPRN_org]

So true!

[M. Wade Shrader, MD @orthodawg91]

Iona is a huge force in the field of #CerebralPalsy. Well deserved, and congratulations to my good friend.

[Cerebral Palsy Research Network @CPRN_org]

Thanks for all your hospitality and generosity!

[Nemours Children's Health @Nemours]

The brightest minds in #CP research united in Wilmington, DE for the annual meeting of the @CPRN_org, hosted by the esteemed Nemours Children's CP Center. Together, we're advancing the frontiers of cerebral palsy research. 🤝💡 #CPRNAnnualMeeting #CPResearchLeaders

[Cerebral Palsy Research Network @CPRN_org]

Do you want to be at the center of the fastest growing registry for #cerebralpalsy research? Do you have a PhD in clinical epidemiology, rehabilitation science, or several years of clinical research with a masters level degree? Apply: https://t.co/8BsWTx1aMk

[Cerebral Palsy Research Network @CPRN_org]

We are excited to share the details and benefits of our new partnership for both the community members and the research community for #cerebralpalsy. 1+1=(a lot more than 2)!

[Cerebral Palsy Alliance Research Foundation @ResearchForCP]

Tune in TONIGHT for a convo with leaders from CPARF & @CPRN_org to learn more about our partnership that will benefit people with #CP, parents, caregivers, researchers & medical experts by ensuring that proven science makes its way to more people sooner ➡️https://t.co/pdoS81vvD1

[Cerebral Palsy Research Network @CPRN_org]

We share in the excitement with @ResearchForCP where our priorities are aligned and are skills are very complementary. We look for to doing great things together for the #CerebralPalsy community -- people living with CP, caregivers and families and the clinician researchers!

[Cerebral Palsy Alliance Research Foundation @ResearchForCP]

We’re excited to announce that we’re partnering with @CPRN_org to transform the lives of people with #CerebralPalsy! The partnership will generate new findings about #CP & ensure that people with CP and their parents, caregivers & medical teams can benefit from proven science.

[Cerebral Palsy Research Network @CPRN_org]

As always, we expect this webinar to be clear, meaningful and well thought out. Join@Dr Bhooma to learn more about more about Adults with intellectual and developmental disabilities!

[Bhooma Aravamuthan MD DPhil @drbhooma]

This webinar and all others in this series will be posted at our Adult IDD Webinar YouTube Channel: https://t.co/3avK0SKFwe

[Cerebral Palsy Research Network @CPRN_org]

Happy to be sharing more #CPStories with today's glimpse into the motivations and impact of @drbhooma who is truly a bright light, a rising star and an incredible leader in the care of people with #CerebralPalsy. https://t.co/ysmcNxSVxf

[Cerebral Palsy Research Network @CPRN_org]

Gina Kline is powerfully summarizing the importance and opportunities to innovate for the disability economy at the #RemarkableTechSummit. Thanks @RemarkableTech for putting together such a meaningful program about #AssistiveTech that will impact #cerebralpalsy outcomes.

[Cerebral Palsy Research Network @CPRN_org]

@jkaufmanconsult @RemarkableTech @petehorsley Love your statement that "the disability community is the only minority group that anyone might join at any time" (hope I didn't misquote) at the #RemarkableTechSummit

[Cerebral Palsy Research Network @CPRN_org]

Very excited to be at the #RemarkableTechSummit to see how the CP Research Network can help #AssistiveTech entrepreneurs bring advances to market to help the #cerebralpalsy community. Thanks to @RemarkableTech!

[Cerebral Palsy Research Network @CPRN_org]

So excited to be partnering with Steve Wisniewski, PhD, from Pitt's Epidemiology Data Center to be our new Data Coordinating Center PI! Pitt will host our two #cerebralpalsy registries and be our partner in research for numerous studies under development. https://t.co/mvSwy5Qn6Q

[Cerebral Palsy Research Network @CPRN_org]

@drbhooma @NewbornBrains Any registry data in their work?