Cerebral Palsy Register for Wales

We are a group comprising of individuals who have cp, families and professionals from across Wales who are developing a cerebral palsy register for Wales.

[Cerebral Palsy Register for Wales @CP_Reg_Wales]

Looking forward to our next Cerebral Palsy Register for Wales Steering group meeting this afternoon.

[Bevan Commission @BevanCommission]

💡💡Do you want an opportunity to work with the Bevan Commission to try out and test new ideas to support a sustainable recovery across Health and Care services in Wales ? Applications for Exemplars Programme Cohort 7 are now open https://t.co/EjWieqfFrP💡💡

[amanda lawes @MandaLawes]

This sounds amazing!

[European Academy of Childhood-onset Disability @EACDtweet]

Thank you Giovanni Cioni for your leadership, enthusiasm and dedicated work for @eacd

[Cheryl Battersby @DrCBattersby]

Are you a neonatal nurse or doctor involved in discharging babies from hospital? Please can you kindly complete Sarah’s survey if you haven’t already? Thank you!
@NNAUK1 @NeonatalNurstin @naazmerchant @geraintjl @ShaziaHoodbhoy @OliverRackham @ngozi_ediosagie @Liz_McKechnie

[Cerebral Palsy Register for Wales @CP_Reg_Wales]

Good luck in your new home @CP_Cymru

[Cerebral Palsy Cymru @CP_Cymru]

After almost 30 years, it is time to say goodbye to our much-loved therapy centre at Park Road, Whitchurch.

[Cerebral Palsy Register for Wales @CP_Reg_Wales]

Those with disabilities are particularly affected.

[Comisiynydd Plant | Children's Commissioner Wales @childcomwales]

Significant report by the @EHRCwales to the UN Committee. I'll be publishing, along with the other UK children's commissioners, a report to the UN Committee early December. I suspect that there'll be a lot in common with this report out today.

[EHRC Wales @EHRCwales]

Our latest report on children’s rights in Wales raises concerns about how the pandemic is exacerbating existing inequalities. Concerns include more children being pushed into poverty, widening educational inequalities and worsening mental health. Report: https://t.co/YWG4emcTDA

[UP - The Adult Cerebral Palsy Movement @upmovement_cp]

We were pleased and proud to be part of it. Giving us another opportunity to highlight why #CP needs to be considered as a #lifelong condition.

[KarenHorridge💙 @KarenHorridge]

We are yet so far as a society from embracing and celebrating developmental difference. We are all different! Let us value each other. Everyone.

[Cerebral Palsy Register for Wales @CP_Reg_Wales]

Pain is so important as it directly impacts quality of life.

[Bernard Dan @ProfBernardDan]

In a nutshell:
Chronic pain prevalence is high in children with predominant #dyskinetic and mixed #cerebralpalsy.
Pain occurs across multiple body locations.
Less recognized locations include the face, jaw, and temple. https://t.co/WxgBnqZj1i @ClareMcKinnon3 @AusACPDM

[Kids Brain Health Network @KidsBrainHealth]

Listen to @jdzwicker & @KShikakothomas discuss the need for monitoring the Convention on the Rights of the Child (#CRC) and Convention on the Rights of Persons with Disabilities (#CRPD). Join the virtual event and sign-up here: https://t.co/62uxrdl6WK

[UP - The Adult Cerebral Palsy Movement @upmovement_cp]

We've done this before -so lets get prepared @adultcphub here with support group meetings so you don't have to feel alone.
#lockdown2uk #InThisTogether
@scope @cpscotland @ cpteens
@cpsport @Bobath_Centre @action_cp @CarrieALightley @RADiCALadultCP

[UP - The Adult Cerebral Palsy Movement @upmovement_cp]

In these difficult times we must not forget the collateral damage of this pandemic #cerebralpalsyawareness #lifelongcondition @action_cp @Bobath_Centre @CpScotland @scope @nicecharityuk

[CRC @centralremedial]

with senior experts in Gillette Children's Speciality Healthcare, a world renowned centre of excellence for Cerebral Palsy. The event will include a conversation with @lilycollison
and @tommycollison and Tom Novacheck. Register for this free event 👇 https://t.co/VqMSI3Uvj7

[Cerebral Palsy Register for Wales @CP_Reg_Wales]

Thanks for sharing @jess_baggaley @JCarrollCPCymru & @CP_Cymru may also have interested followers

[Jess Baggaley @jess_baggaley]

@tasnimhassan94 @Bobath_Centre @BobathScotland @action_cp @Speedincaesar @thepacecentre @CpScotland @CP_Reg_Wales is this something your followers would be interested in?

[Cerebral Palsy Register for Wales @CP_Reg_Wales]

In this excellent session now.

[Margaret McGrath @margaretmcgrath]

Very excited to be hosting the Irish Listening and Sharing session tomorrow morning as part of this global event. Thanks to all those who have already registered to attend. If you haven’t done so yet and would like to join us, follow the links #WorldCPDay

[Mac Keith Press @mackeithpress]

Today is #WorldCPDay Check out our 5 Free Resources on #CerebralPalsy including journal articles, ebook chapters, podcasts and videos https://t.co/GYWJdXjLu4 @worldcpday