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CURe
@CU_Reform
Compassionate Use Reform
#compassionateuse
#expandedaccess
#compassionateusereform
Joined March 2016
54
Following
51
Followers
141
Posts
CU_Reform
retweeted
Dr. Alison Bateman-House
@ABatemanHouse
over 9 years ago
Interested in
#expandedaccess
,
#compassionateuse
? Yesterday
#FDA
posted update re requests received & permitted: https://t.co/diewhmsKbj
CU_Reform
retweeted
The ALS Association
@alsassociation
over 9 years ago
If you or a loved one is living with
#ALS
, a support group can be a great resource: https://t.co/LQo5tJfg5v
CU_Reform
retweeted
Dr. Alison Bateman-House
@ABatemanHouse
over 9 years ago
How Do We Protect Patients From False Promises In
#RightToTry
Laws? https://t.co/nuddWgVdEy
CU_Reform
retweeted
Arthur Caplan
@ArthurCaplan
over 9 years ago
My Turn: Alaska should reject proposed ‘Right to Try’ bills | Juneau Empire - Alaska's Capital City Online Newspaper https://t.co/ltDSr8DPVT
Who to follow
Dennis Akkaya
@DenimDennis
#myTomorrows - | CCO | NY | #preapprovalaccess | #digitalhealth | tweets are my own | #savingmankind | #pinksocks | Podcastlover
Tobias Polak
@TBPolak
Founder at https://t.co/JeK6LJ9ZFp | PhD biostats & compassionate use ErasmusMC| former, myTomorrows, MBB, 2x vice WC junior bridge
CU_Reform
retweeted
Dr. Alison Bateman-House
@ABatemanHouse
over 9 years ago
21st Century Cures would require pharma to post
#compassionateuse
policies on experimental drugs https://t.co/7pRwaqwmnK via
@statnews
CURe
@CU_Reform
over 9 years ago
Thanks
#GivingTuesday
!! Another patient just reached us for
#CompassionateUse
guidance Your gifts will make INFO findable for ALL patients
CU_Reform
retweeted
Sjaak Vink
@sjaakvink
over 9 years ago
Aust patients still don't have access to a breast cancer drug that was FDA approved 2 years ago—not OK! The @socialmedwork is changing that. https://t.co/ndqpQ4cLo3
CU_Reform
retweeted
Yoni - יוני (and Rebecca too)
@Primary_Immune
over 9 years ago
@eatevilpenguins
@CU_Reform
@andi_sloan
@BonnieHunt_real
@nma08244
@Cancer_Agent
@ROAMIEsRTs
"Say Yes" Indeed: Great Day to Ron & All!
CURe
@CU_Reform
over 9 years ago
Did you remember to get your giving on today? Remember to volunteer, donate, or just do something nice for someone today!
#GivingTuesday
CU_Reform
retweeted
Save Locky's Dad
@SaveLockysDad
over 9 years ago
Andrea Sloan was a hero to the
@SaveLockysDad
campaign and to
@Nick
and
@AmyAuden
's fight for
#compassionateuse
Say
#YEStoCompassionateUse
https://t.co/EFphQIFejc
CU_Reform
retweeted
Indiegogo💡
@Indiegogo
over 9 years ago
Kick off this holiday season by showing some gratitude on
#GivingTuesday
: https://t.co/rN1AHd749p
CU_Reform
retweeted
Johnson & Johnson Innovation
@JNJInnovation
over 9 years ago
.
@DrAmritRay
,
@ArthurCaplan
and Prof Liz Grant discussed
#CompassionateUse
today at the Royal College of Surgeons of Edinburgh (
@RCSEd
).
CU_Reform
retweeted
Bill Gates
@BillGates
over 9 years ago
I’m inspired by the generosity of so many people on
#GivingTuesday
. There’s still time to show your support today!
CURe
@CU_Reform
over 9 years ago
@eatevilpenguins
@LoriRMixson
@BonnieHunt_real
@MEGBusfield
@nma08244
@LatoniaPHines
Thanks, all! Each tweet & dollar gets us closer to YES
CURe
@CU_Reform
over 9 years ago
@LoriRMixson
Thanks, Lori! You're awesome!
CURe
@CU_Reform
over 9 years ago
@TheRunnerProbs
Thanks for spreading the word for us! Each tweet, donation, and voice gets us closer to
#YEStoCompassionateUse
for patients.
CURe
@CU_Reform
over 9 years ago
@BallersO
thanks for spreading the word! Each voice, dollar (and Amazon echo winner!) counts in getting patients to
#YEStoCompassionateUse
!
CURe
@CU_Reform
over 9 years ago
@TweetingVines
, thanks for the retweet and for helping patients get to
#YEStoCompassionateUse
CURe
@CU_Reform
over 9 years ago
@GhetoSpongebob, thanks for getting the word out! You're helping patients
#FightToLive
AND helping someone win a cylinder of tunes!
CURe
@CU_Reform
over 9 years ago
@BallersVines, thanks for spreading the
#GivingTuesday
word! Helping patients
#FightToLive
and a little fun--not a bad Tuesday!
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