Julie Marker

Cancer survivor, Exec Team of CANCER VOICES SA. Volunteer advocates 'RAISING A VOICE for those affected by CANCER' in South Australia.

[Julie Marker @CVSA_Jules]

Rewarding to see results at #PC4Symp2019 of studies we (PC4 Consumer Advisory Group) reviewed first as concepts. Consumer involvement embedded in all @PC4TG activities. https://t.co/wsmQRPHxbq #10yearsPC4

[Julie Marker @CVSA_Jules]

I'm supporting @PC4TG’s Twitter this week by promoting their 10th anniversary & encourage you to register for the Scientific Symposium on 4 April https://t.co/wsmQRPHxbq #PC4Symp2019 #10yearsPC4 @CancerVoicesAu @CVSAinfo

[Julie Marker @CVSA_Jules]

A problem that needs to be fixed - why should 'who calls it out' or what form it arrives on (incident, complaint) alter the priority or manner of addressing a S&Q issue?

[BMJ Patient Editor @BMJPatientEd]

When a health professional flags up a problem, it is called an incident report. When a patient does the same, it is called a complaint. How language affects safety culture: https://t.co/6yurA5yHH4 @patientlibrary #patientexperience

[Julie Marker @CVSA_Jules]

Personal stories spread awareness, understanding, information and emotional connection.

[Robin McGee @TCOrobin]

#CancerBookClub discusses this still-important book about facing cancer with lifestyle. Catch the replay: Anti-Cancer a New Way of Life by David Servan Schrieber: https://t.co/7EWCNiTSC7

[Julie Marker @CVSA_Jules]

@BradenHon @AusDiabetesEd @HenshawKim oops, forgot to add #ADEAchat #ConsumerEngagement

[Julie Marker @CVSA_Jules]

@BradenHon @AusDiabetesEd @HenshawKim

[Julie Marker @CVSA_Jules]

@HangryPancreas @BradenHon Not just the diabetes world. Don't beat yourselves up. #ConsumerEngagement is hard, even for consumers to engage with other consumers, and especially with those who are very different to you.

[Julie Marker @CVSA_Jules]

@AusDiabetesEd A6: Links with peers in other topic areas can provide valuable insights, ideas, strategies or practical approaches to #ConsumerEngagement. #ADEAchat This has been great tonight to share ideas

[Julie Marker @CVSA_Jules]

@HangryPancreas @HenshawKim @HealthIssuesCtr Absolutely. Involve a consumer as PhD co-supervisory - to learn engagement from a research career start. Learn together! Fund us to attend conferences and reflect together about what had impact.

[Julie Marker @CVSA_Jules]

@AbsolutVy @HenshawKim @AusDiabetesEd Funding, reporting & public criteria requiring #ConsumerEngagement will drive the change. @ADEAchat

[Julie Marker @CVSA_Jules]

@AusDiabetesEd A5: Seek training opportunities e.g. 'Introduction to Consumer advocacy' or ‘Involving consumers in research’. Many online resources are available. Contact reps, consumer organisations or peer leaders for tips & advice. #ADEAchat

[Julie Marker @CVSA_Jules]

@HangryPancreas Yes, that's where our work developing networks is so important, consumer to consumer. I’ve also networked researchers, brought relevant articles to attention, triggered throughts into new directions by questions I’ve asked. Raised priority of topics. Never ‘too late’ to start;

[Julie Marker @CVSA_Jules]

@HenshawKim Great points Kim! Ways to ensure disadvantaged groups are engaged and heard is still a challenge. As consumer reps we should try to help bridge these gaps. #ADEAchat

[Julie Marker @CVSA_Jules]

@AusDiabetesEd A3: attributes- consumer experience, knowledge & perspective fit for the role;
enhanced capability via networks & understanding beyond personal experience;
communication, skills & motivation to support the context, purpose, goals & outcomes #ADEAchat

[Julie Marker @CVSA_Jules]

@HangryPancreas @HenshawKim Lots of methods for #ConsumerEngagement, depending on your purpose. Also depends of capacity of reps in terms of experience, expertise, capability, time, motivation... #ADEAchat

[Julie Marker @CVSA_Jules]

@AusDiabetesEd A2: Including consumers can bring in fresh issues or perspectives, assist with practical considerations including communication & dissemination, identify priorities for action. #ConsumerEngagement An essential component of good practice. #ADEAchat

[Julie Marker @CVSA_Jules]

@AusDiabetesEd In reps role my aim is to actively improve services, research or policy as an advisor, expert, advocate or partner, bringing a lived-experience perspective. As a consumer I'm a service recipient #ADEAchat

[Julie Marker @CVSA_Jules]

@AusDiabetesEd A1: Co-design is partnering in a 2-way relationship of meaningful, sustained collaboration, evolving through a shared focus. #ADEAchat
#ConsumerEngagement a broader term for activities involving consumers & health-professionals or researchers in planning, implementation etc