As your constituent & someone impacted by #ALS, I urge @senatorshaheen to increase and not cut #ALSResearch in the FY2024 budget: https://t.co/qICnsMMxmV
As your constituent & someone impacted by #ALS, I urge @senatorhassan to increase and not cut #ALSResearch in the FY2024 budget: https://t.co/qICnsMMxmV
On #LouGehrigDay we remember an American icon and strive to honor his legacy.
Visit https://t.co/fAOHUDHFKP to see how you can help in the fight against ALS.
Why do we need to have #ALSAwarenessMonth? Because the vast majority of the country does not know that ALS is always fatal or even what it is. So we will keep making noise until we change that.
There are tens of millions of you who do not follow me.
I am a 42-year-old father and husband with a fatal disease. I have one focus in life: Changing the healthcare system so it helps patients like me.
Said differently, following me will be both fun and we will get shit done.
I, for one, believe that every member of the ALS community - patients, advocates and organizations - should be in favor of the NurOwn AdComm.
It is finally a chance to have a transparent assessment of the science and the real world evidence.
I miss being able to message @becky_mourey at random times to share our shitty ALS journey together. While I never met her in person we connected on a zoom call when we were first both diagnosed. We were close in age, similar symptoms, recently she called me her ALS sister.
Considering signing up for @synapticure I currently receive excellent care from Healey Center for ALS at Mass General. I also have a wonderful primary care physician closer to my home. What's your opinion?