Canadian Cerebral Palsy Registry

Connecting families and researchers to better understand CP in Canada. / Le Registre canadien de la Paralysie Cérébrale vise à mieux comprendre la PC au Canada.

[HayleySmithersSheedy (she/her) @hss_1]

Great presentation @_smcintyre on a collaboration ACPR, @SCPEtweet, Canadian CP Register & Global LMIC CP Register. Headline findings: prevalence of CP is declining in high-income countries, now 1.6 per 1000LBs; prevalence in LMICs at least double.

[Canadian Cerebral Palsy Registry @CanCPRegistry]

Neurology resident Amaar Marefi (@McGillPeds) was pleased to present her poster on the risk factors and term born periventricular leukomalacia in children with Cerebral Palsy at the recent Child Neurology Society meeting in Boston! #CNSmeeting2021

[Canadian Cerebral Palsy Registry @CanCPRegistry]

Summer is not over yet! Try out are open (male and female) for the national Para Soccer Team on August 14 in Laval. They are looking for players with mild cerebral palsy, stroke or acquired brain injury. Contact Drew Ferguson at [email protected] for more information!

[Canadian Cerebral Palsy Registry @CanCPRegistry]

The CPR team is collaborating with the Strongest Families Study Team. The purpose of this study is to see if the SFN program is helpful for families who are caring for a child with a neurodevelopmental disability. Visit https://t.co/crdeijP9x2 to know if your child can take part!

[Canadian Cerebral Palsy Registry @CanCPRegistry]

I am excited to share that our article, Losing a diagnosis of cerebral palsy: a comparison of variables at 2 and 5 years, was one of the top 10 most cited articles published in 2020 in #DMCN. Click the following to read it now: https://t.co/IJgThqSHwK
#DMCN #CP #CPCanada

[Canadian Cerebral Palsy Registry @CanCPRegistry]

We are pleased to present you a second researcher who recently joined our team: Dr. Jordan Sheriko! Dr. Sheriko is the Medical Director of the IWK Rehabilitation Services and an Assistant Professor at Dalhousie university in Halifax. Welcome!

[Canadian Cerebral Palsy Registry @CanCPRegistry]

We are pleased to present a researcher who have recently joined our team, Dr. Ram Mishaal. Dr. Ram Mishaal is a developmental pediatrician, pediatric neurologist, and medical director of the neuromotor program at the Sunny Hill Health Centre at BC Children's Hospital. Welcome!#CP

[Canadian Cerebral Palsy Registry @CanCPRegistry]

We are very proud to share our latest article titled Cerebral palsy in Canadian Indigenous children. Full article in the link below!
https://t.co/2P4IJpjhSH #CerebralPalsy

[Lena Faust @LenaFaust1]

Fantastic new book on spastic #cerebralpalsy by @lilycollison. Thank you so much for writing this! As an adult w mild CP, finding answers to many of my qs all in one place is amazing! Looking forward to reading more! @GilletteChildrn @CanCPRegistry https://t.co/e4Ehi1rfk9

[Canadian Cerebral Palsy Registry @CanCPRegistry]

Félicitations, Samuel ! Congratulations to Samuel Charron, a great athlete and person. #CerebralPalsy

[Canada Soccer FR @CanadaSoccerFR]

« La ville d’Ottawa et la province de l’Ontario devraient être fières de lui. Sam n’est pas seulement un des meilleurs joueurs au monde. C’est aussi un des jeunes les plus gentils au monde », lance Drew Ferguson #canPara 🍁

✏️Le Droit https://t.co/9LkogQ6ZJ7

[Canadian Cerebral Palsy Registry @CanCPRegistry]

Des chercheurs et cliniciens de Montréal et Toulouse mettent en place un programme de danse par télésanté (c'est-à-dire à distance) s’adressant à des enfants et adolescents âgés entre 7 et 21 ans et ayant un diagnostic de paralysie cérébrale. Inscription:
https://t.co/UDKJKuyAeV.

[CHILD-BRIGHT Network @ChildBrightNet]

Our next webinar is only a week away! Register now to hear from IMAGINE project members Colleen Guimond and Patricia Birch about how they’re using #WholeGenomeSequencing and metabolomics to determine diagnoses for children with atypical #CerebralPalsy: https://t.co/Ldyz3ceiRN

[CHILD-BRIGHT Network @ChildBrightNet]

The transition home from the #NICU can be challenging, especially during #COVID19. On Sept. 29, join 3 of our CCENT project team members as they reflect on how best to support NICU families, in this webinar co-hosted by CHILD-BRIGHT and @ChildHealthCan: https://t.co/SZuJKRDLRu

[Cerebral Palsy Alliance Research Institute @CPA_Research]

We’re excited about the development of new #cerebralpalsy registers around the world, including in Sri Lanka.

Congratulations to Thilini Madushika Heiyanthuduwage, the Sri Lankan CP Register team and our colleagues on their new protocol.

Full article➡️
https://t.co/Us7mqAL5Xc

[Canadian Cerebral Palsy Registry @CanCPRegistry]

Invitation from the @CPCanadaNetwork: "We are currently disseminating a survey that will inform a national strategy for cerebral palsy in Canada. Feel free to complete and share the survey below: https://t.co/Os7HLimUlt. We hope to produce a report by September." #CerebralPalsy

[Miriam Gonzalez @DrMiriamG]

We want to know how #caregivers of children (all ages) with a disability are coping during #COVID19. Help us contribute to #WHO #UNICEF global report on developmental disabilities!
Fill out the survey at: https://t.co/xGZloqS7Y0
Caregivers, PIs- RT!

[Bhooma Aravamuthan MD DPhil @drbhooma]

Accurate phenotyping in #cerebralpalsy is critical for accurate diagnosis. Another case in point via @CanCPRegistry @NeurologyCP : Ataxic-hypotonic Cerebral Palsy in a Cerebral Palsy Registry: Insights Into a Distinct Subtype https://t.co/Ga5JtSNM5D