Prepare your business for election risks with insights from “Election Risk: How Polls Lie.” Dr. Ian Oxnevad and Christopher Mason discuss the pitfalls of political polling and its impact on business strategies.
https://t.co/ft3DatdCsP
#Elections#Fraud#Misinformation
Cure ME/CFS and long COVID.
Tens of millions of people are lying in dark rooms right now, waiting for someone to crack a biology that medicine still barely understands.
With the right data, if AI can decode the mitochondrial dysfunction, the immune dysregulation, the broken energy metabolism, the autonomic collapse, it will have done something no institution has bothered to fund properly in years.
That would be historic.
Please save us.
Millions of Americans live with infection-associated chronic conditions and illnesses, including long COVID, ME/CFS, and Lyme disease–associated chronic symptoms; conditions that are often debilitating, misunderstood, and under-recognized.
In a new Clinical Infectious Diseases viewpoint, CAPT Iskander and Dr. Haridopolos of the Office of the U.S. Surgeon General call for making these “invisible illnesses” visible through patient-centered care, stronger surveillance, multidisciplinary management, and continued research investment.
The article emphasizes the importance of validating patients’ lived experiences while advancing evidence-informed care to improve outcomes for people living with these complex chronic conditions.
1 in 200 humans on earth are missing from their own lives due to ME. ME is a devastating physical illness that makes rubble of the lives of patients and families. Clinically, we’ve known it’s real for decades. Biologically, we had proof by the 1990s. But society still acts like it’s not real. This is a historic injustice. #MEAwarenessDay
#MEAwarenessDay
10 years 99.9% bedbound.
15 years since the illness began.
23 y/o to 38 y/o in the blink of an eye, but the extraordinary suffering has been felt in every second of those years.
And there are thousands like me, or worse.
#MECFS#ME#MEAwarenessDay
@stefan_arce Your mother will always love you Stefan no matter what happens. I speak quietly & calmly around my son because it helps him; he needs a quiet room without noises, steady temperature & low lighting. If I forget he reminds me. Maybe you can help her understand exactly what helps.
@stefan_arce Understood; there is a lot of medical information to process as well as being a caregiver. How are you feeling now that your feeding tube was replaced? I’m so sorry you are going through this debilitating illness. We are here to help when you need us.
@stefan_arce Also we are speaking with my son’s doctor next Sunday & I’ll ask if he has colleagues that can assist in Mexico. All of my sons appointments are video calls. This is a cruel illness but medical research is increasing & soon better treatments will be available.
@stefan_arce We are available to speak with your dad to help him understand this illness & help with some things. Please let me know how you would like us to reach out to him? There are Caregiver support groups on Facebook that may be helpful for your dad if you like I can send u a link?
@stefan_arce Wishing you well in this important procedure Stefan. We can help your father understand better how to help and support you afterwards, whenever you can let us know.
@mike_malaise Very sorry to hear this Mike. My son is bedridden and was worse a couple of years ago. LDN, Mestinon & antivirals like Valgancyclovir helped. Things can change daily. Resting & pacing are key & find the tiniest amounts of joy anywhere you can. Look up vagus nerve to calm ANS.
@Y0ur_Neighb0ur Wishing you the happiest birthday possible! Find joy even in the smallest of things every day and build on that whenever you can. New treatments and research will start changing this dreadful illness soon.💙
@992tobias Please keep fighting Tobias. You are my son’s age; he too is bedridden with MEcfs, including PEM, POTS, MCAS and gastroparesis. Things will change soon with millions having this illness, esp as a result of Long Covid (sadly). Better treatments will be found. Stay with us ❤️🩹
I now have a GoFundMe. Maybe this makes it easier for some to help. I’m fighting to survive and every bit of support counts. If you can’t donate, a repost means the world. Thank you for seeing me. #MECFS#pwME#POTS#MCAS#LongCovid#pwLC#PTSD
https://t.co/bq4bsgYkTf