Kevin Kuo

blood doctor finding new treatments for #Thalassemia #SickleCell #PKdeficiency #HS #HE/#HPP #CDA #G6PD, @SHNcares, @UofT_DoM @ihpmeuoft Tweets are my own

[Kevin Kuo @CaptainAV]

Toronto hospital looks to provide life-long care to sickle cell disease patients closer to home https://t.co/f1jKWmpNg2

[Kevin Kuo @CaptainAV]

Iron deficiency limits hydroxyurea-induced fetal hemoglobin and clinical efficacy in sickle cell disease | Blood | American Society of Hematology https://t.co/4c5DIxh3S4

[Kevin Kuo @CaptainAV]

Single Cell Hemoglobin Quantification Reveals HbF and HbS Increases in Sickle Erythrocytes from Patients Treated with Hydroxyurea | Blood | American Society of Hematology https://t.co/yQOWjyJPKL

[RADeep Network @RADeep_network]

📣We are pleased to announce that RADeep will participate in the 67th #ASH Annual Meeting and Exposition!

✅This year, we will present four key contributions focused on real-world data, outcome research in hemoglobinopathies, and Europe-wide data standardization efforts.

[Kevin Kuo @CaptainAV]

Kanter J, et al. Implementing linkage coordination: Patient experiences in the recruitment and engagement in care to impact practice enhancement (RECIPE) for SCD study

How this translates to less acute care would be important.

https://t.co/CMPUZOKL2O

#ASH25

[Kevin Kuo @CaptainAV]

Congratulations Neelan from @uoftmedicine @ihpmeuoft !!! Well done!

Sriranjan N, et al. Point of care hemoglobin measurement to streamline clinical decision-making: A single center experience

https://t.co/AcfUe0AXV8

#ASH25

[Kevin Kuo @CaptainAV]

Chawla A, et al. Accelerating access to gene therapy: Lessons from commercial implementation in sickle cell disease and transfusion-dependent thalassemia

https://t.co/9n3oVDkUxo

#ASH25

[Kevin Kuo @CaptainAV]

Miranda M, et al. The weight of stress: Allostatic load as a predictor of vaso-occlusive episodes in adults with sickle cell disease

https://t.co/c61KkqYzuz

#ASH25

[Kevin Kuo @CaptainAV]

Sanni A, et al. A united-states nationwide analysis of sickle cell genotype-specific differences in inpatient outcomes

Some results are thought provoking despite methodological limits. Absolute risk of death was not published but essential.

https://t.co/cpDJZh3U1r

#ASH25

[RADeep Network @RADeep_network]

📍​Dr. María del Mar Mañú Pereira (RADeep Coordinator and Scientific Coordinator of the @ERNEuroBloodNet & #ENROL) presented “Towards ethical AI in Rare Diseases: data quality and clinical validation for real equity” at the XXXI National Congress on Health Law in Madrid, Spain.